It’s 3am and I’m still awake because the boys are struggling after a brief visit with their mom. Elliott managed to fall asleep, but Emmett had a nightmare, and refuses to go back to bed for fear it’s going to happen again. Then of course, there’s Gavin. Poor Gavin had a particularly bad night. He …
150 results for Autonomic crisis
Jan 18 2020
A Birthday We Almost Didn’t Get To Celebrate
Today is a big day in The Autism Dad household because Gavin turns 20 years old. This would be a milestone birthday on its own but for us, it’s more than that. For the last decade or so, Gavin’s health has become very fragile. I recently wrote all about that and you can click here …
Dec 21 2019
I want off the ride but it just never ends
Elliott and Emmett are on the mend and doing much better. I woke up this morning with a pounding headache and spent most of the day, unable to get out of bed for very long. I think whatever this is, just hit me differently than it did the boys. Unfortunately, about 7 PM this evening, …
Aug 11 2018
The truth is sometimes I don’t want to remember
My experience with Wishes Can Happen this morning was quite profound. I’m completely emotionally drained and physically exhausted. At the same time, it was for a very worthwhile and and well worth the fallout. I’m not sure if people understand how difficult it can be to talk about one of the most horrible thing any …
Jun 13 2018
1 phone call has sent me into a complete panic
I wrote about frustrations and explanations for why guardianship hasn’t been completed for Gavin. I was explaining how things keep coming up that force us to reprioritize everything. See: I’m going to need an attorney. Not twenty-four hours go by and we’re slammed once again, with yet another potentially life threatening issue. I received two …
May 02 2018
The last time we were here, we received devastating news
Today is going to be one of the biggest days we’ve had in awhile, at least as far as Gavin and his health are concerned. Gavin finally gets back into Gastroenterology. We’ve finally come full circle and I’ll explain why. It’s been awhile since he’s been seen and that’s only because we were basically overrun …
Dec 05 2017
This is what’s going to happen at the @ClevelandClinic today
Here’s the game plan for today. Shortly after taking the boys to school, we have to get Gavin to Dr. Reynolds for a follow-up and to discuss how he’s doing since lowering the Clozapine dosage. The appointment is pretty early so we should be his first or second patient, meaning it won’t take all day. …
Dec 05 2017
Keeping an eye on Gavin because he’s not doing well tonight
Gavin isn’t doing so well this evening. Everything was fine until an hour after he went to bed. He came downstairs in a lot of pain, feeling nauseated and convinced he was going to throw up. We told him if he thinks he needs to puke, he needs to be in the bathroom. If he …