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Emmett’s test results came back and their very frustrating

Emmett’s test results came back and their very frustrating

About mid-afternoon, right before I picked Elliott up from school, Emmett's doctor called. I had left a message because we were notified that Emmett's results came back but the page…

Continue Reading Emmett’s test results came back and their very frustrating
This is why we have to watch Gavin so closely around food

This is why we have to watch Gavin so closely around food

Gavin's not feeling so well. It began last night with him overeating at the cookout. Gavin has never been one with a functional ability to self-regulate. As an example, he…

Continue Reading This is why we have to watch Gavin so closely around food
The last time we were here, we received devastating news

The last time we were here, we received devastating news

Today is going to be one of the biggest days we've had in awhile, at least as far as Gavin and his health are concerned. Gavin finally gets back into…

Continue Reading The last time we were here, we received devastating news
It’s likely nothing to worry about but there are two much more serious possibilities that he’s genetically tied to

It’s likely nothing to worry about but there are two much more serious possibilities that he’s genetically tied to

I still haven't heard from the doctor as to what time Emmett's supposed to be seen in the morning. I'm supposed to call back if I don't hear from them…

Continue Reading It’s likely nothing to worry about but there are two much more serious possibilities that he’s genetically tied to
Hasn’t he already been through enough?

Hasn’t he already been through enough?

For the third night in a row, Gavin has struggled to go to sleep because he isn't feeling well. Last night it was a stomachache and headache. Tonight is was…

Continue Reading Hasn’t he already been through enough?
All that matters is that they get to go

All that matters is that they get to go

The boys are gone, and on their way to the Akron Zoo with their Grandparents. That's a bit of mixed emotion for us, because we wanted to take the boys,…

Continue Reading All that matters is that they get to go
New concerns with Gavin’s health have us worried

New concerns with Gavin’s health have us worried

We're heading into a rough weekend. I need to catch you up on a few things I didn't get around to yesterday.  The most concerning issue at the moment is…

Continue Reading New concerns with Gavin’s health have us worried
Waiting for answers at the @clevelandclinic 

Waiting for answers at the @clevelandclinic 

Lizze and I made it to Cleveland, with a bit of time to spare. We did that despite some asshole almost crashing into us as he tried to pass us…

Continue Reading Waiting for answers at the @clevelandclinic 
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