30 Days of Water: Falling off the wagon

It's been a little while since I updated you in my attempt to give up all other beverages except water.  I did really good for the first week or so but caved in a few times since then.  Sometimes, I just get so stressed out and water isn't very comforting for me.  I had some root beer while we were all Chuck E Cheeses this weekend and I drank some OJ a couple of days ago.  While, I didn't remain as steadfast as I would have liked, I'm still drinking way more water than I was before.  I hardly ever drank water before, it's was always milk or soy milk.  For some time now, 95% of my liquid intake was things like milk, pop or juice.  For the last week…

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Our Return to Akron Children’s Hospital and the Cleveland Clinic

This week is going to be a crazy one for us.  Gavin has his infusion in the morning at Akron Children's Hospital.  He will be receiving IVIG for about 4+ hours tomorrow.  This is a treatment for his primary immunodeficiency and it's the only thing keeping him as healthy as he is. On Tuesday, we will be returning to the Cleveland Clinic in order to see his autonomic specialist.  The Cleveland Clinic appointment is extremely important because Gavin's heart rate is still way to high and we need to figure out how to reduce it to a safer level.  We will also have to deal with the excessive weight gain as well. We can't allow his eating habits and weight gain to affect the way his medications are working.   I…

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Check out my #Autism Awareness Store

I wanted to invite you all to visit by new #Autism Awareness Shop over at CafePress. My reasons for opening this store are many but most importantly, I want to spread Autism Awareness in unique and creative ways. My goal is to start dialogue with those unfamiliar with Autism and also show support for those touched by it as well. A portion of each sale will come back to me but having said that, it's not really about the money. Honestly, every little bit helps but all I'm really looking to do is help cover the costs associated with this site, the My Autism Help Forums and the out of pocket shipping costs that go along with my giveaways. Basically, I want to keep being able to do what I do, without…

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The nightmare that is Chuck E Cheeses

We took Elliott and Emmett to Chuck E Cheeses on Saturday.  Elliott's birthday is on Monday and we wanted to do something special for him. He's going through a lot right now and we wanted to just celebrate him in a way that he would be thrilled to death with.  He loves Chuck E Cheeses and actually does really well there despite everything that Chuck E Cheeses is.  We all had a great deal of fun until I got sick.  That's right, Daddy sorta ruined things towards the end because I had to get home and lay down. The boys were really understanding and I'm really grateful for that but I still feel really bad.  I'm really glad the boys had a good time but OMFG, I friggin HATE Chuck…

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Please join the My #Autism Help Forum and help me to help others

Do you ever find yourself wishing that you could talk to someone that understands? Someone that get's it. Personally, I know what that's like and I decided to do something about it. I want to encourage everyone to join the My Autism Help Forums. The My Autism Help Forums are designed by me and run on the industry standard forum software, vBulletin. Because I own, manage and enforce rules in the forums, they are a safe place to speak your mind, vent or ask/answer questions. There is a zero tolerance for bullying or harassing. I want everyone to feel free to share without fear of repercussions from other members. We don't always have to agree with each other. I do however, require that you treat everyone with dignity and respect.   The forums are readable by…

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…..and the winner is Bruce R. (@bruceray)

I'm thrilled to announce that Bruce R. is the winner of the latest Lost and Tired/Idolian android tablet giveaway. I have been in contact with Bruce and he is very excited to receive this amazing tablet from Idolian. Stay tuned for the next Idolian Tablet giveaway. This should be live on 3/04/13.

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#Autistic Works of Art: Finger Painting pt 3

I wanted to share another piece of Emmett artwork.  This is another finger painting masterpiece that he made.  It's always really cool for me to see what his beautiful mind cooks up.  This site is managed via WordPress for Android, courtesy of the @SamsungMobileUS Galaxy Note 2 by @Tmobile. Please forgive any typos. I know how to spell but auto-correct hates me.  ;-) For more ways to help the Lost and Tired family, please visit Help the Lost and Tired Family.

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To all the haters: Why are you so quick to judge?

I realize that by putting myself out there like this, I open myself up to people's opinions. Usually, I do think have a problem with hearing what my readers think. In fact, I actually like hearing from people and learning what they think.  Many times, I'm met with incredible insight and amazing advice. Having said that, recently there seems to be a great deal of negative, to the point I actually made my YouTube channel private. You would not believe the hateful comments I received from people who took the videos out of context and failed to see what I was trying to do.  I didn't even respond to them and even stopped reading them altogether. I even get comments from people on the blog who read one or two…

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