Emmett had an accident today while bouncing around.  It was a pretty close call because he fell and hit his face on the corner of a book case. He's really lucky cause he just and I mean just missed his eye. I will say that both Lizze and I about stroked out as he fell.  It was like it happened in slow motion and we couldn't get to him in time.  Thankfully, he is okay.

Today marks Gavin's 23rd antibody infusion. December will mark the 2 year anniversary of Gavin being diagnosed with Primary Immunodeficiency. Depending on how Lizze is feeling in the morning, she may be taking him for his infusion. It's easier for her to take Gavin than it would be for her to stay home the ever energetic, Mr. Emmett John. It's really hard to believe that it's been almost 2 years on this immunological journey. It's been a long road.  A road that was at times, quite scary. It's a lot for a kid to have to cope with and for the most part, Gavin does really, really well. We have the typical issues of him being demanding to the staff or at times, downright disrespectful. Overall, I'm really proud of…

Emmett decided that he wanted to take a nap this morning.  However, he wanted to have nap in the fort.  That was fine with us. He wouldn't go unless someone sat upstairs with him. That someone,  happened to be me.  So Emmett is laying in the tent/fort.  I'm laying in Elliott's bed, which is next to him.  He's watching Big Big Friend on Elliott's TV and I'm starting out the window, watching the leaves blowing off the tree.  Do your kids have a special fort or tent that they like to play in? Top: This is what the inside of Emmett's fort looks like.  He's laying on a toddler mattress and use derived his weighted blanket. Bottom: This is me laying next to him so he feels safe. 

Last night, Elliott woke up just before I climbed into bed. He and Emmett had been camping out in his room.  Elliott had a bad dream and couldn't go back to sleep. I finally had Elliott just crash in Emmett's bed. About 45 minutes later, I woke up out of a dead sleep, choking. I literally couldn't breathe. I wasn't choking on anything, however, my airway was completely occluded.  The only reason Lizze woke up was because I was flailing around, half on the bed and half on the floor. I honestly thought I was going to die.  The entire incident lasted about 1 minute but that was the longest minute of my life.  Finally,  my airway began to open and I couldn't breathe once again. I happened to look…

I know I haven't had much in the way of updates on Operation Hope. Right now, it's moving at a snails pace.  In fact, I think the snail would beat us. The problem is that Wraparound is currently waiting for records to be transferred.  These records are necessary in preparation for going before the board and petitioning for funds. Unfortunately, Gavin has a lot of records.  It's going to take some time to get everything in order. At the moment, Wraparound is trying to help us with our mortgage.  We have fallen behind, not that it's a shock to anyone to hear that.  Anyways, they are helping us locate resources that might be able to help us get caught up, so we don't slip further behind. If we do manage…