Gavin has officially been diagnosed with Epilepsy.  I'm in complete shock right now. I suppose that goes to show just how little I know about it. I'm waiting for Lizze and Gavin to walk out of the revolving door. I'll soon find out how much our lives are about to change.   :-( **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store Posted from WordPress for Android so please forgive any typos as auto-correct and I don't see eye to eye. :-)

My sweet little Emmett John has hit yet another fever cycle.  The fever isn't very high at all but you can see that he's not feeling good. To make matters a bit worse,  he has got sores once his tongue again. If your keeping track,  this is the fourth cycle in 5 or 6 weeks. This is unprecedented for Emmett and really rough on him. Hopefully the geneticist will have answers for us so we know what is going on that causes this and also what we can do about it. My heart breaks for my Emmett John.  :-( **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store Posted from WordPress for Android so…

Emmett has already been up for almost 4 hours now.  He woke up about 4 am and wouldn't go back to sleep. I'm sooooooooooo tired right now.  We have to leave in a little while to go pick up Gavin and Lizze We should be getting home around nap time and hopefully I'll get to partake in a brief siesta before having to go get Elliott from school. Unfortunately,  I would be better off using that time to catch up on everything that I've failed to do so far this week because Lizze was gone. I have a few phone calls to make,  a yard that desperately needs mowed,  a writing deadline to meet, a sink full of dishes and a house in dishevel.  I'm so far behind on just…

A few weeks ago,  the Easter Bunny brought the kids these plastic hollow animals,  filled with these tiny little candy balls.  When you push down on the head,  the animal poops out the candy into an Easter basket. I'm not sure what the Easter Bunny was thinking but I would guess it had something to be really tired and stressed out.  Perhaps a little Lost and Tired.  ;-) I hate these stupid things. The head of the animals makes this constant noise.  In the case of the cow featured in this post,  it would moo constantly.  They are touch sensitive and so the damn thing would go off every time the boys would run around the house. I couldn't take it anymore.  I snapped. That goddamn cow would not stop…

I've received a few questions today about the legendary squishy couch I refer to from time to time.  I thought I would explain. For those of you out there wondering what I'm referring to when I say squishy couch,  this one's for you. The Squishy couch was born out of necessity.  Originally,  when Elliott was having a really hard time sleeping and we ended up down stairs in the middle of the night,  I needed a way to make him feel safe.  He would wake up with the sensation that he was falling and be terrified. So one night I decided to try pushing the couches together.  I explained to him that there was no way he could fall now.. It worked,  thus the squishy couch was born. Now it's…

Tonight Emmett had Dr.  Patti.  It's the last remaining therapy he has left. He spent most of the time playing with the all knowing and always awesome Dr.  Patti. He loves the play kitchen and spent the entire time cooking dinner for Dr. Patti and rearranging the kitchen to his liking. It was really nice to see him just be a kid for a little while. :-) **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store Posted from WordPress for Android so please forgive any typos as auto-correct and I don't see eye to eye. :-)

Lizze has spoken with the doctors today and has learned some new things about what's going on. The good news is that the meds seem to be working at this point or he just hasn't had any seizures today. They went over the first 24 hours of the EEG and said that something interesting. Apparently,  there is a specific brain wave that is present in many kids that have seizures and it's presents in between each seizure. Gavin has that brain wave pattern. We are totally new to the whole seizures thing and so I'm not totally sure what everything means, but I'm learning. Aside from that, they haven't even been able to induce a seizure in him. I would think that is a good thing, right? They told Lizze…

Please be aware that I'm venting in this post and use some colorful language in the process.  Sorry Mom... I had our brief IEP meeting with Gavin's school today.  Man....the hits just keep coming.  Part of Gavin's MFE was to repeat his intelligence testing.  This is important for several reasons but for us,  right now,  it gives us an idea of where he is now,  compared to where he was. Unfortunately,  Gavin's score has dropped across the board.  I'm not looking at the paper work right now but one category he went from a 109 previously,  to a current score of 94. So while he has dropped across the board,  some aren't as bad as others. The major concern right now was his score on the Composite Memory Index.  Previously…