Hey everyone, I need some help. As you know, wandering is a very serious problem when it comes to children on the Autism Spectrum. I have been speaking with someone that wants to help. You can help by participating in a brief phone interview. They are developing a device that can significantly increase the odds of a very fast recovery. I have have been consulting on this solution and I'm very, very impressed and I truly believe this will make a difference.  Right now there is a need for a pseudo focus group and opinion gathering. This would take place over the phone and require 15-20 minutes of your time. They are looking for parents with kids in various places on the Autism Spectrum, but with a focus on parents with concerns…

After Gavin's infusion was completed and we were on our way home,  Gavin saw something that just made his day. Our rental car shows the radio station information,  as well as the song name and artist. Gavin happen to look at the radio as the song was changing and saw his name in lights.  It was a song by Gavin DeGraw and so the name Gavin DeGraw was scrolling across the screen. Gavin was so amazed that he was on the radio.  It was a well deserved moment of bliss and he rode that high for quite some time. It's the little things that mean the most... Sometimes,  my kids have to remind me of that. Posted from WordPress for Android

Gavin’s 7th Antibody Infusion was a success.  He did really well and I am of course,  very proud of him. We will be returning on February 20th of infusion number 8. When Gavin's infusion takes place before noon,  he is served lunch.  This time he happen to pick breakfast.  After the infusion is completed,  they do a 100cc flush of normal saline.  This is simply to make sure everything in the tubes get into his blood stream.  They have also involved him in disconnecting everything,  so he becomes more comfortable with the process. Ironically,  he complains more about the tape removal then he does the IV itself.. After the infusion is completed, Gavin gets to pick a prize from the treasure box on the way out.  Next to the video…

The time has arrived for the infusion to begin.  Basically,  they will start an IV and draw some blood for a CBC.  They do this so that Gavin doesn't need a separate blood draw in order to get his Clozapine prescription filled. The infusion will last a few hours and they will frequently take his vitals to ensure his body isn't having a reaction. He will continue to pass the time along games.  However,  I have had to ask him to stop playing when the nurses or doctor comes in because he completely ignores them.  He's so lost in his game that he doesn't respond to them when they are talking to him. So the games get paused until they leave to he can focus on the conversation. This is…

We have arrived at Akron Children's Hospital for Gavin’s 7th Antibody Infusion. It's really hard to believe he has already had 7 of these already.  It's already become pretty routine and so we simply just go through the motions. As always,  once we arrive he has to be prepped.  Basically,  that entails vitals,  numbing patches for the infusion site and some medications to help his body accept the donor antibodies without a reaction. The preparations take about an hour or so.  During this waiting time,  Gavin is resting in his private room,  playing PlayStation and waiting on his lunch.  I'm so proud of him because he never,  ever complains about the pain or inconvenience of these potentially life saving infusions. Rock on Gavin. :-) This is the main waiting room…

It's hard to believe that Gavin has been having these potentially life saving antibody infusions for 7 months now. Tomorrow morning,  Gavin will receive his 7th infusion at Akron Children's Hospital. He has pretty much gotten this down to a science.  He does really well and spend about 3 or 4 hours playing video games as that's really the only time we allow him to do that. They also serve him lunch as well as snacks. I think that with each successful infusion,  the process becomes quicker.  Gavin's body tolerates the donor antibodies pretty well so they can more rapidly infuse him. While it seems like we have been doing this forever,  it's something that he will have to have done for the rest of his life. I'm confident that…

Lizze and I were watching Netflix and all of a sudden we heard what sounded like an explosion. Elliott and Emmett both woke up and were frightened. It literally rattled the windows. Maggie was going nuts and people had come out of their houses to see what was going on. While I was talking with one of my neighbors,  we heard more.  These sounded like gun shots as apposed to actual explosions.  We were hearing them to the north and the south of us.  I have no idea what it was but decided it was best to retreat back to the house and call the police. They are sending cars out.  I don't know if they had received other calls but it seemed like they had. Now I'm gonna escape…

Lizze and I are downstairs watching King of the Hill and kept hearing this thumping sound. We figured it was Gavin because he was the only one still awake. Having said that, I had no idea what the hell he was doing. When the noise didn't stop,  I went upstairs to see what heck he was doing. I want you to guess what he was doing..  Go on and guess. I'm waiting...... Since I bet most of you won't ever guess I'll just tell you. He was freaking running into the wall in his bedroom,  falling down and doing it again....over and over again. WTF......... I was like,  "WHAT THE HECK ARE YOU DOING? " I meant that question to be rhetorical but of course,  he answered. He was like, …