If you've been wondering lately, where the heck is the Lost and Tired family's wraparound team, you aren't alone.  They failed to call us for our last meeting before Summer vacation. We were supposed to be contacted and we never were.  We will be back to school for a month now and we still haven't heard from our case manager/wraparound coordinator. To be completely honest, I don't know how much it was actually helping anyway. There was a great deal of talk but nothing ever really transpired. The truth is that it really isn't anyone's fault.  The problem, in my opinion, lies in the complexity of our situation. There isn't a whole lot they can do that we aren't doing already. Lizze and I are nothing if not resourceful. We…

Today at school, Emmett created this lovely piece of artwork. He drew a beautiful tree and then glued real leaves onto it. Emmett wants me to make sure that I stress that these are real leaves that you can really touch. :-) He's so proud of this and I'm so proud of him. This site is managed almost exclusively from my Galaxy S4. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired "Like" me on Facebook Visit the My Autism Help Forums To reach me via email, please Contact Me   Setup of an account with Bluehost and I get paid. If your looking for a host for your website or blog. Click the image below and check out Bluehost. It's what I use.

To show you how overwhelmed I am right now, I missed my meeting with the Autism Society of Greater Akron this morning.  My brain is so fried at this point, I lost track of the days. I thought our meeting was tomorrow but they called me this morning and wanted to know where the heck I was.  :O They were totally cool about it and I was able to telecommute and still participate in the meeting.  I'm so frustrated with myself because I hate screwing up like this.  I'm not always good at cutting myself any slack. I'm sure many of you can relate to that feeling. Anyway, we are setting up a support group for parents of kids with Autism, living in or around Stark County Ohio. Right now…

The morning didn't go so well.  It began super early once again.  Emmett came running into our room because of a bad dream.  He wouldn't go back to his room, so we made the best of it and tried to get some sleep. It didn't last long but I tried to let Lizze sleep.  When it was time to get up, she let me sleep and got the boys ready for school. Elliott was freaking out about the BMI testing they are doing this week.  He was refusing to go to school because of it and came close to having to be carried out to the car. I'm not sure how his day is going to go. Please say a prayer that it goes well for him. Gavin on the…

I got a call from the Cleveland Clinic today about Gavin.  They were actually returning my call from earlier.  It's truly amazing how quickly the Cleveland Clinic can return a phone call.  :-) We discussed Gavin's new symptoms and the possibility of finding a doctor or clinic that can look at Gavin's chronic health issues as a whole. I think it's important that we try and move beyond addressing things as individual health crises. What are the chances of one child having all of these major health issues and not having them all be somehow connected? Anyway, they (the Cleveland Clinic) will be looking into finding any additional options.  They're also looking into whether or not Gavin can take Miralax without throwing off his fluid balance. I'm supposed to hear…

Emmett came home from his grandparents the other night with a bike helmet.  I'm not sure why he came home with it but he was excited.  :-) Tonight before he went upstairs to go to bed, he took his helmet and put it on my head and told me to be careful.  O_o He's so funny.... This site is managed almost exclusively from my Galaxy S4. Please forgive any typos as autocorrect HATES me. ;-) Follow @Lost_and_Tired "Like" me on Facebook Visit the My Autism Help Forums To reach me via email, please Contact Me   Setup of an account with Bluehost and I get paid. If your looking for a host for your website or blog. Click the image below and check out Bluehost. It's what I use.

Wow..  Today has been a rather emotionally charged day. The boys were up extremely early and Lizze is definitely not having a good day. It's been one of those days. I received a phone call from Gavin's insurance company this morning.  It was from a case manager and she was going to be in charge of Gavin's medical health (think an advocate for Gavin). Gavin's got a case manager for his mental health as well. Basically, I had to go through his entire story and explain as much as possible, about his health and what's going on with him. These aren't easy things to talk about.  It's not like avoiding the subject makes it go away but having to go over everything again, felt like it was happening for the…

One of the things that I left out last night when sharing what happened to Gavin was a new realization. This realization is going to make things way more complicated going forward. Last night, I realized for the first time that Gavin has become aware of his deteriorating health.  Up untill now, it never appeared as though he was self-aware enough to understand what was going on. However, after talking with him last night, it's clear that he is.  It's not like he understands what's going on but he's getting worried. I asked if he wanted us to talk with him about what's going on with his health.  He said maybe. This changes everything.... Now we have to worry about whether or not he's intentionally hiding things because he's afraid…