There was a problem with the genetic sample that Gavin provided the Cleveland Clinic
I received a call last year out of the blue from a genetic counselor at the Cleveland Clinic because Gavin’s specialist at The Cole Eye Institute had reason to believe that Gavin may in fact have Jalili Syndrome.
This was a more painful infusion because it’s more fluid being pumped into his skin but Gavin did really well.
We finally made it. We arrived at 10:30 am for a 10:00 am appointment. It should take about an hour to get to the Cole Eye Institute and I gave myself an hour and a half to avoid being late …