Important Update to Gavin’s genetic testing for Jalili Syndrome

It’s been many months since I received any news from the Cleveland Clinic in regards to the genetic testing Gavin had last year. 

Last year, Gavin had a very specific genetic test performed to diagnose something called Jalili Syndrome.

I received a call last year out of the blue from a genetic counselor at the Cleveland Clinic because Gavin’s specialist at The Cole Eye Institute had reason to believe that Gavin may in fact have Jalili Syndrome.… Read More