Surgery went well and I humbly thank my friends at the @ClevelandClinic

I really appreciate all the concern. It took a bit longer to get this out than I had originally planned because I'm moving a little slower than I thought I would be, but I wanted to let you all know how I'm doing. I'm in between meetings at the moment so I will make this super quick. Yesterday I had surgery at the Cleveland Clinic to remove a cyst that was right in the center of my back, along my spine. This was elective in the sense that it wasn't giving me any problems yet but it would become problematic if left alone. I simply chose to deal with it before it became a problem. The surgery went great. It's a surreal experience to have your back operated on while…


We are it to the @ClevelandClinic

We've made it to the Cleveland Clinic this morning, and that's despite the Universe's best efforts to delay us with horrible standstill traffic. I'm hoping that we won't be here all-day. All that said, we made it safe, sound, and on time. That's what matters the most.


I want to share some good news

I've been living at my grandmother's nursing home for the last couple of days. My brain is completely fried, and I'm exhausted beyond belief. While I was here yesterday, Lizze got word back from her neurologist about the results of her recent MRI that was done on her brain. Her doctor contacted her to let her know that everything was normal, and there's no physical abnormalities in her brain. That means no tumors and the cysts aren't an issue either. That's obviously a relief but also frustrating at the same time. She's in so much pain all the time, and part of her would have almost been relieved if something had been discovered because then at least we knew the cause of her pain. That being said we're very grateful…

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It’s not at all what we expected

I'm keeping this brief because I'm exhausted, both emotionally and physically. That said, I did want to let you know what happened at Lizze's appointment with her orthopedic specialist. The X-rays came back and apparently; there's nothing that requires surgical intervention. That's awesome but not at all what we thought was going to happen. Lizze has been told a few years back that she needed surgery to clean up her knee. She put it off until her knee was so bad that she couldn't take it. It turns out what looked like damage was a bit of arthritis behind her knee cap. The problems she's experiencing don't seem to be her actual joint physically. What the doctor thinks is happening is that the arthritis is causing something, I can't remember…

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Is knee surgery in our future?

Alright. Lizze had her knee x-ray, and as expected, it went just fine. We don't know what they show, but the process was smooth. She got in early, and we had about an hour to kill before she sees her doctor to learn the results. I was mistaken about her having an MRI on her knee today as well. She needs it and will have it done, but insurance required the x-ray first, and then we can schedule a return trip for the second MRI. It would be nice to knock this all out today, but insurance is being difficult. It's only about an hour long drive to get here, so it's not a huge deal. We just can't get enough of the Cleveland Clinic. 🙄 Hopefully, we'll at least…


The @ClevelandClinic is probably getting sick of us

We got the boys dropped off and made our way back to the Cleveland Clinic again today. This time we're at the Medina location because that's where her orthopedic specialist is. We have a crazy long day ahead of us and plenty of time to wait between appointments. Lizze is getting an x-ray of her knee first; then she sees her doctor. About two hours after that, she has an MRI with contrast of her brain. This is related to her migraines. You may remember that Lizze has what her old neurologist called, a brain full of cysts. They are not believed to problematic, but her current neurologist at the Cleveland Clinic hasn't seen them, and he wants to make sure all is well inside her dome. We have always…


It’s eerily quiet in my house right now

It's super quiet in my house right now, and that rarely happens, but I like it. Emmett is watching a video, Gavin is sleeping off his morning meds, Elliott is just sleeping, Lizze is getting ready for her appointments, and I'm writing this. 😊 We have a long day ahead of us, and on the other side of it, we'll know how bad Lizze's knee is and what kind of surgery is necessary. I know she's really nervous, but today is just about gathering information. I'm hoping that anything she needs to have done is minor in nature. It seems like everyone in my life right now is undergoing knee replacement surgery. I'm not sure her knee is that bad, but we'll soon find out. Please keep her in your…

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This sums up our trip to the @ClevelandClinic today

It's been an incredibly long day, and I'm exhausted. For those tardy to the party, Gavin and I spent the day with our friends at the Cleveland Clinic. He was undergoing neuropsych testing. The purpose was to benchmark his level of function across several categories and compare to his baseline testing from 2014. We've seen what feels like significant regression over the last few years and his neurologist ordered neuropsych testing to establish where his new or current baseline is. Doing so will give us a better understanding of what's changed over the last five years, and we can do to better support him. His testing went well. I think it was roughly here hours long. He finished the entire process this time, and while he did get frustrated, he…