My thoughts – Page 405

1 BIG reason I’m worried about Gavin

This is an important update on Gavin's current overall status and one that's a bit concerning, although not entirely unexpected. Gavin's officially off of Lithium for the first time in over a decade. We were a bit caught off guard at the timing because we were supposed to stop this coming Thursday but when his new box of meds was delivered this weekend, it was devoid of Lithium. By the time we would be able to address this, it would be close to the original cutoff date anyway. Frankly, it doesn't matter, aside from finding out why they pulled it in the first place because we never told them to. Anyway, Gavin's off of Lithium for the first time in over ten years, and we're bracing for a major unknown.…

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March 19, 2017

My thoughts

I feel like I’m being held hostage by my sick kids

Both Elliott and Emmett we're home from school, as I mentioned earlier. Both boys also seemed to be doing better during the first half of the morning. Unfortunately, shortly after the lunch hour, things went downhill. Lizze and Gavin were both sleeping. It was just the E's and myself in the living room. Elliott fell asleep on the one couch and ended up sleeping for well over four hours. The poor kid would stir a bit, cry and fall back asleep. 🙁 Mr. Emmett climbed up on my lap and fell asleep in a really awkward position. He was clearly comfortable but I was far from it. I was twisted in a weird position and all I wanted to do was straighten my leg out but I couldn't without moving…

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March 16, 2017

My thoughts

We just can’t catch a break

After I finally got the kids to sleep last night, I ran into another mini-crisis. Out of nowhere, Gavin wakes up sobbing because his back and neck hurt so bad that he couldn't go back to sleep. I woke Lizze up. It took her and I both, to calm Gavin down. The only thing we could do was give him an Advil and try to get him back to sleep. He did eventually go back to sleep, and when he woke up this morning he was feeling better. We have no idea what caused his pain last night but suspect that perhaps he was sleeping in a weird position. Lizze let me sleep this morning and she got up with the boys. Actually, she pulled the wife card and ordered…

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March 15, 2017

My thoughts

The past 5 days have taken their toll

As I'm writing this entry, it's 12:35am and I'm not sleeping or even in my own bed. Both Elliott and Emmett are awake, feeling like shit and running fevers. To make things even more unfortunate, I'm running a low grade fever as well. What I need more than anything is a good night's sleep but that won't be in the cards tonight, once again. Unfortunately, the medications (and they are necessary) Lizze has to take at night preclude her from being able to help out much in this area. Having said that, she will be good in the morning and I can go back to sleep, in my amazing new bed. At least we have nothing going on today. I've been doing this since last Friday and I'm dying at…

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March 15, 2017

My thoughts

The past 5 days have taken their toll

As I'm writing this entry, it's 12:35am and I'm not sleeping or even in my own bed. Both Elliott and Emmett are awake, feeling like shit and running fevers. To make things even more unfortunate, I'm running a low grade fever as well. What I need more than anything is a good night's sleep but that won't be in the cards tonight, once again. Unfortunately, the medications (and they are necessary) Lizze has to take at night preclude her from being able to help out much in this area. Having said that, she will be good in the morning and I can go back to sleep, in my amazing new bed. At least we have nothing going on today. I've been doing this since last Friday and I'm dying at…

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March 15, 2017

My thoughts

At least it doesn’t count as a sick day

We received a call early this morning, letting us know that school has been canceled due to bad weather. It's not like the boys were going to school anyway, but there's an upside here. As a result of school being canceled, this won't count as an absence. That's a good thing cause it helps keep those days limited, especially where Emmett's concerned. While I haven't checked temperatures yet this morning, both boys seem to be feeling okay so far. I'm not hearing the coughing and hacking I've been hearing previously. This bug seems to kinda come and go throughout the day. The boys may seem okay now but will be miserable later on. That's how this has played out so far. Anyway, there won't be any therapy today as a…

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March 14, 2017

My thoughts

The good news and the bad news

Okay folks, we have a mishmash of things to share tonight, but I'll be brief. I'll start with the good news.The boys are all asleep, and in their own beds. That's a major victory right there. Unfortunately, I'm still awake because I can't sleep for some reason. At bedtime, Emmett still had a fever but I'm not sure about Elliott because I forgot to check. At this point in time, no one is getting any worse but still miserable. As for the bad news, Gavin went to bed with a really bad stomach. He'd been fighting it on and off today but it got really bad during his IVIG infusion tonight. He's pretty freaked out about puking and that made it worse. Thankfully, he's currently sleeping and I'm going to…

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March 14, 2017

My thoughts

My kids with #Autism are terrible when they’re sick lol

I hate when my kids are sick. I don't like them having to go through that and they are really terrible sick kids. When I say really terrible sick kids, I mean they are miserable and make everyone around them miserable. I'm talking super cranky, very difficult and quite prone to massive meltdowns. Having said that, it's not their fault and my heart goes out to them. I provide them with every comfort I can but that doesn't mean they don't still drive me crazy. I'm pretty frustrated with my whiny, bickering and disagreeable sick kiddos today. Lol Sensory issues are ramped up and they are so sensitive to absolutely everything. I give them patience, until I'm almost out and ready to run off and join the circus. It doesn't…

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March 13, 2017