Gavin has now missed two IVIG Infusions in a row
This makes me nervous because it's unprecedented for us as Gavin's never missed two infusions in a row.
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December 14, 2015
I’m already strongly disliking Monday
I'm so tired. I was up with Elliott until about 4 am this morning. He was feeling like he wanted to go to school but then...... Read More
December 14, 2015
I’ve got a puker :(
I was finishing up my last post and getting ready to head to bed when Elliott walks down the stairs, looking like death warmed over.
December 14, 2015
We need to get caught up
It's been a really chaotic week and I spent most of the time the boys were gone just sleeping.
December 14, 2015
The kids are gone and here’s an important update
I pulled the post from last night about Elliott's EEG because after rereading it, I didn't like the way I presented part of it. I was exhausted and frustrated.
December 13, 2015
Have you ever been too tired to sleep? That’s where I am tonight
Have you ever been too tired to sleep? That's where I am tonight
December 12, 2015
Elliott’s EEG: I don’t even know what to say about this but here’s what happened
Yes, I'm angry. Yes, this is really fucked up but it's over and done with. Here's what happened.....
December 12, 2015
Elliott is scared to death :(
Elliott is scared to death of what awaits him in the morning
December 10, 2015
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