Category: IVIG Infusion

My #specialneeds #immunocompromised son is terrified by #COVID19 and afraid of dying alone

I just spent a good chunk of time trying to convince Gavin that he does not have COVID19. This is heartbreaking and becoming an ongoing struggle that’s proving difficult to navigate. In case you’re one of my many new readers, here’s a little background on Gavin so you can put this into perspective. Gavin is …

Continue reading

In other news

In other news, Gavin’s IVIG Infusion went well. I’m still batting a thousand in the IVIG infusions that don’t leak category. Gavin’s happy and it also means less pain for him as well. His infusion went pretty quick today. It took less than an hour in total and that’s always a good thing. Sometimes it …

Continue reading

#Autism parenting is all about progress not perfection

It’s not a huge surprise that Gavin’s appointment with his immunologist went well. These appointments rarely go poorly because he’s monitored so closely on a weekly basis. Gavin sees his immunologist because he has Common Variable Immunodeficiency or CVID, which put simply, means he lives with a severely compromised immune system. This is a life …

Continue reading

His #IVIG infusion was a disaster this morning and here’s why

Gavin’s been having a difficult morning so far. It was IVIG infusion day again (as it is every Monday and Friday), and it did not go well. Lately, Gavin likes Lizze to place the needles in his belly because they don’t often leak when she does it. Lizze and I are both concerned that Gavin …

Continue reading

Gavin had a massive, massive meltdown this morning

Gavin slept in this morning which is weird in and of itself. He didn’t wake up until just before I got home from my morning walk. As I walked in the door, Gavin was working on getting his IVIG infusion ready, and it wasn’t going well. It’s been about an hour, and I just got …

Continue reading

Longer needles are needed

Gavin will be resuming his IVIG infusions this morning. He missed his infusion on Friday cause his supplies didn’t arrive until late and then he ended up in the hospital. We opted to hold off until today because he was in bad shape and when he was getting back on his feet, we didn’t want …

Continue reading

%d bloggers like this: