Gavin had his IVIG infusion this morning and here’s how it went

Gavin had a really good IVIG infusion this morning.  He’s gaining a little bit of weight so there’s more body fat on his tummy to make needle placement less painful. 

I think this particular infusion clocked in at roughly an hour. 

He only had to run to the bathroom a couple of times and spent the time he wasn’t in the bathroom, playing Halo 5.… Read More

How my son copes with the pain from his twice a week procedures

Gavin takes on so many things that it’s easy to overlook the things that help him to cope, especially with the more painful procedures. 

In Gavin’s case, he has to have needles stuck into his belly twice a week in order to deliver the GAMMAGARD that provides him with a functioning immune system. 

We’re infinitely thankful that he receives this life saving treatment but it sucks that it’s so painful for him. 

We used to numb the injection sites prior but it ended up creating more anxiety because he anticipated the needles while we waited for the numbing cream to work. 

One of the ways we’ve helped Gavin to survive these infusions is by keeping him distracted during the process. 

While he’s sitting or laying on the couch, all hooked up and receiving treatment, he’s usually playing on his tablet, listening to music or in this case, play Halo 5 on the XBOX.… Read More

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