May 07 2020
I just spent a good chunk of time trying to convince Gavin that he does not have COVID19. This is heartbreaking and becoming an ongoing struggle that’s proving difficult to navigate. In case you’re one of my many new readers, here’s a little background on Gavin so you can put this into perspective. Gavin is …
Sep 16 2019
In other news, Gavin’s IVIG Infusion went well. I’m still batting a thousand in the IVIG infusions that don’t leak category. Gavin’s happy and it also means less pain for him as well. His infusion went pretty quick today. It took less than an hour in total and that’s always a good thing. Sometimes it …
Aug 07 2019
It’s not a huge surprise that Gavin’s appointment with his immunologist went well. These appointments rarely go poorly because he’s monitored so closely on a weekly basis. Gavin sees his immunologist because he has Common Variable Immunodeficiency or CVID, which put simply, means he lives with a severely compromised immune system. This is a life …
Jul 19 2019
Gavin’s been having a difficult morning so far. It was IVIG infusion day again (as it is every Monday and Friday), and it did not go well. Lately, Gavin likes Lizze to place the needles in his belly because they don’t often leak when she does it. Lizze and I are both concerned that Gavin …
Apr 15 2019
Gavin slept in this morning which is weird in and of itself. He didn’t wake up until just before I got home from my morning walk. As I walked in the door, Gavin was working on getting his IVIG infusion ready, and it wasn’t going well. It’s been about an hour, and I just got …
Apr 15 2019
Gavin will be resuming his IVIG infusions this morning. He missed his infusion on Friday cause his supplies didn’t arrive until late and then he ended up in the hospital. We opted to hold off until today because he was in bad shape and when he was getting back on his feet, we didn’t want …
Apr 12 2019
Alright, so we have another little problem. With all the craziness going on in regards to Gavin’s detachment from reality, we overlooked that Gavin’s IVIG infusion supplies haven’t arrived yet. This is not a huge deal at this point, but we’ve been having issues with nationwide shortages of his IVIG medications recently. We’ve had to …
Feb 25 2019
It was a rough morning in the sense that everyone was dragging. Emmett had a rough time falling asleep last night because he’s got a stuffy nose and while that’s unpleasant for anyone, it’s especially troubling for someone with sensory processing disorder. Lizze got lunches made and I got the boys to school before hitting …
