So here’s how Gavin’s doing

Gavin seems to be feeling okay today. That’s obviously good news, because he had a rough night, as I said earlier. He’s currently sleeping, but that’s likely just his morning meds.  We’re taking it easy this afternoon but plan on …


Hopefully it goes well and without side effects

The boys had a great time at their Grandparents house last night and today. They’ve been rather quiet since they arrived home. I haven’t heard any fighting and that’s awesome.  We’re going to do dinner and then Gavin’s IVIG infusion, …


IVIG infusion supplies are late

There’s been a pretty major snag today. Gavin’s IVIG infusion supplies have not yet arrived. It’s been a few months since we’ve had any problems, and maybe they’re out for delivery today, but it’s put his infusion on hold.  The …


New reasons for special needs parents to worry about healthcare

My son Gavin, has something called Primary Immunodeficiency. This means that his body doesn't produce enough antibodies to fight off infections. What antibodies his body does produce, are defective. Thankfully, there's a treatment for this life-threatening condition, and it's called IVIG. Gavin receives his …

It sends Gavin into a panic every single time

Gavin’s IVIG infusion is well underway and aside from a few hiccups, it seems to be going well. The hiccups I’m referring to are the result of one of the needles in his stomach leaking. This isn’t a huge deal …


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