I’m a single father to 3 kids with #Autism and I’m getting sick O_o

There should be some kind of universal law that keeps special needs parents from getting sick. Life is hard enough on the best of days, being sick and trying to manage just isn't right.  lol I've had to adjust my week because Emmett and Elliott are both under the weather and I'm feeling pretty horrible myself at the moment.  I rescheduled Gavin appointment with immunology for next week because I have no idea if Elliott or Emmett will actually be going to school today. They had a pretty rough day of not feeling well and managed to tough it out but it took a toll.     You have to be flexible when you have special needs kids because if you aren't, life will steamroll right over you.. On positive side,…

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This week is off to a rough start 

This school week is off to a rough start. I picked the boys up early today because Emmett had physical therapy at Akron Children's.  When I arrived at the school, both Emmett and Elliott weren't feeling well. Elliott had a meltdown at school because he wasn't feeling well but they said it didn't last long and they helped him to calm down. Gavin is supposed to be in Cleveland tomorrow for the immunologist but if the boys aren't feeling well, Ice got no way to make that happen. Plus the ideal of Gavin making a 90 minute drive and having to go to the bathroom every 5 minutes, isn't exactly on my short list of fun things to do.     Elliott and Emmett are in my face, constantly snuggling and…

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The results of my first of three IEP meetings

The IEP meeting has come and gone for today. It didn't really take that long. In fact, I waited longer for someone to even talk to me.  Below are the Periscope broadcasts from this morning, both before and after the meeting.     The long and short of things is that it appears that the best option is to withdrawal Gavin from school and when he turns 16 in a couple of months, remove him permanently.  It's not ideal but unfortunately, his health is such that I need to focus on that and school simply isn't as important.   If things improve, he could always go back or get his GED.   https://youtu.be/VOkQI9gc5KE https://youtu.be/zvXjjDSmjPc

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Gavin started crying today because he’s afraid to live in our neighborhood 

First of all, the boys and I have started using Periscope to live broadcast moments in our life. We figure that maybe people can learn something or perhaps we can help someone.  Out of nowhere today, Gavin became hysterical after he asked to take the trash out.  He came back in the house, went upstairs to his room and started freaking out. When I asked him what was wrong, he said that while he was taking out the trash, he couldn't stop thinking about someone sneaking up on him and pulling a gun.  This sorta came out of nowhere but at the same time, he been indicating that he's uncomfortable in our neighborhood since the hostage crisis a couple of months ago.     I tried to talk to him about it…

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I don’t usually make this kind of mistake

Yesterday was a rough one. Emmett wasn't feeling well last night and neither was I. Emmett's dealing with an upper respiratory thing and mine may just be allergies.  Anyway, turns out we don't have an appointment for Gavin today because the doctors office is closed for Labor Day.  This is a bit weird because I definitely have it on the calendar for today and I don't normally make that kind of mistake.  This leaves us with a whole lot of nothing to do and that fits just right. Emmett seems to be feeling a little better right now but you can tell that he's still under the weather and I'm nursing a sinus headache. Nothing on the schedule has worked out well.    

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If this week doesn’t kill me 

If the next week or so doesn't kill me, it's gonna definitely make me stronger. Gavin's supposed to be at the immunologist in the morning but I need to reschedule because both Emmett and I are now sick. This works out for the best because it well over an hour and twenty minutes away and Gavin can't make it five minutes in the car without stopping to pee. Emmett's absolutely miserable and that makes life even harder for him.. This isn't a good week to be sick because I have 3 IEP meetings, at least half a dozen appointments and a trip to Akron Children's Hospital for Emmett.  I'll finish this post up tomorrow because my head is pounding and the boys are sleeping. I'm gonna crash...   

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How is the morning going after a night of little sleep?

While I'm running on fumes, we are off to a great start this morning. Emmett finally fell asleep around 2 am and I was out soon after. Despite the general lack of sleep in the house, everyone is in a good mood and getting along.  Sometimes when the boys don't get enough sleep, the can become more easily overwhelmed by the world around them. Sensory issues become more prominent and the meltdowns are abundant. This morning however, the boys are holding their own and that's pretty awesome.....  ❤️❤️❤️❤️   

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My life is hard but I wouldn’t change it for anything

It's no secret that raising a child with Autism is not an easy task. It's even less of a secret that raising three kids with Autism is just plain hard. It should go without saying that raising three kids with Autism as a single parent is probably one of the toughest jobs in the world.  I've been doing this for a really long time and I still find myself wanting to scream on occasion. As with most people in a similar situation, I often feel completely overwhelmed by life and sometimes I just wish it would slow down... Despite all the challenge, heartache, stress, frustration and lack of sleep, I would change my life for anything in the world. ❤️❤️❤️❤️❤️   

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