Search Results for “Autonomic crisis” – Page 3

150 results for Autonomic crisis

Gavin’s had a really rough day

Gavin’s had a tough day and probably not for the reasons you’re thinking. Behaviorally, Gavin’s been an angel for the most part and we couldn’t ask for more.  Unfortunately, the things that have been a problem today are more health related. Gavin’s had stomach aches, on and off all day long.  There’s nothing that seems …

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Here’s what happened at the @ClevelandClinic yesterday

We had to make our way to the Cleveland Clinic yesterday for a Pediatric Neurology appointment. Gavin had a follow-up in regards to epilepsy and autonomic dysfunction. I already shared the results of his Orthostatic testing but you can find those here. Overall, his appointment went really well. We talked about our concerns in regards …

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I fear Gavin is getting sick now and that’s very serious

I’m way to tired and stressed out to deal with anything getting any worse.

The good news is pretty awesome and the bad news is Childhood Disintegrative Disorder

The has been one of the most emotionally exhausting and heartbreaking days ever.

My heart breaks for Gavin tonight

For the second night in a row, Gavin is going to bed sick to his stomach. I’m not sure what’s going on but it was so bad that he went to bed before 6:00 PM. I don’t think he’s actually sick sick but it might be autonomic in nature. These could be mini to moderate …

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How Gavin’s appointment went and why I’m so overwhelmed

We were gone for most of the day and it was an exhausting day at that. I want to start by thanking my Mom for helping out with the boys yesterday. We truly appreciate it. There was a lot of construction on the way to Cleveland but the drive was only about one hour and …

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I had to make plans for a worst case scenario with Gavin tonight

“….. It’s easy to forget how fragile his health is because he’s been so stable this past year and a half but complacency is not something I can afford to have in this type of situation…..”

When my son with fragile health gets sick, I freak out

It’s been a stressful and emotional roller coaster today and I’d like to get off the ride now please. When my son with fragile health gets sick, I freak out because there are so many unknowns.