Gavin's had a tough day and probably not for the reasons you're thinking. Behaviorally, Gavin's been an angel for the most part and we couldn't ask for more. Unfortunately, the…
We had to make our way to the Cleveland Clinic yesterday for a Pediatric Neurology appointment. Gavin had a follow-up in regards to epilepsy and autonomic dysfunction. I already shared…
I’m way to tired and stressed out to deal with anything getting any worse.
The has been one of the most emotionally exhausting and heartbreaking days ever.
For the second night in a row, Gavin is going to bed sick to his stomach. I'm not sure what's going on but it was so bad that he went…
We were gone for most of the day and it was an exhausting day at that. I want to start by thanking my Mom for helping out with the boys…
“….. It’s easy to forget how fragile his health is because he’s been so stable this past year and a half but complacency is not something I can afford to have in this type of situation…..”
It’s been a stressful and emotional roller coaster today and I’d like to get off the ride now please. When my son with fragile health gets sick, I freak out because there are so many unknowns.
