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Unbreak my heart: An Honesty Post

For the first time in a very long time, I'm completely at a loss for words. I've never found myself in a position that was quite as painful as the…

Autonomic Crisis: 11/13/2012 Further Complications

Lizze and Gavin are on their way home. For whatever reason, his infusion finished much faster than anticipated. His HR has not dropped below the mid 130's since at least…

Autonomic Crisis: 11/13/2012 Please pray

Lizze just called me from Akron Children's Hospital and told me that Gavin's heart rate is so high that it keeps setting off the alarms. Right now, his resting heart…

Why didn’t I think of that: An Honesty Post

Once upon a time, I had a really good job,great insurance and A+ credit. One day, this thing called life happened. Before I know it, I suffered a life altering…

Who’s looking for perfect? I’m not.

Last night, Elliott and Emmett camped out in the giant tent inside Elliott's room. Elliott even slept in the tent as well. The other night, Elliott wasn't comfortable sleeping in…

23 IVIG infusions down and a lifetime to go

Today marks Gavin's 23rd antibody infusion. December will mark the 2 year anniversary of Gavin being diagnosed with Primary Immunodeficiency. Depending on how Lizze is feeling in the morning, she…

The list keeps growing

Lizze is not doing well at all today. A few hours ago, she was doing okay. However, she opted to take a shower and since then, she has been sick…

Operation Hope: Update 11/12/2012

I know I haven't had much in the way of updates on Operation Hope. Right now, it's moving at a snails pace. In fact, I think the snail would beat…