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Update on Gavin’s fever

I know I promised this yesterday but life has been absolutely crazy. I’m having to swim a bit harder to keep my head above water. So, I apologize for the delay. I shared the other night that Gavin was running a low grade fever, at least what a low grade fever is for him. He’s …

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My #autistic son gave himself a haircut today

I know some of you may not get how unbelievably awesome this is but I’m sure you’ll be excited for Gavin nonetheless. Gavin has made it very clear that he wants to live with peers or other people his age, likely walking a similar path in life. Lizze and I have been talking about this …

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Gavin keeps losing weight

I’ve not talked about this in a while but as it’s become a problem once again, it’s time. Gavin is losing weight after maintaining for a most of the year. He’s not losing crazy amounts of weight but he’s lost all he’s gained. We have an upcoming GI appointment and we’re going to discuss the …

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Gavin gets his final dose of the #COVID #vaccine today

It’s gonna be a hectic day. I have a two hour meeting after lunch and it should finish up just in time for me to get Gavin to the health department for his second dose of the Pfizer COVID vaccine. I’m a little concerned about how Gavin is going to handle the side effects. More …

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Quick Update On Gavin’s Condition

It’s been a long stressful day but when is it not, right? I wanted to drop a quick update on Gavin’s situation because I have some news. After a many phone calls and several attempted workarounds, Gavin’s new lab orders were faxed to Akron Children’s Hospital. By the time we got there, it was pushing …

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Gavin’s in rough shape after his 2nd dose of the #COVID #vaccine

It’s been a challenging weekend and I haven’t been keeping up with the blog as a result. This will be a super quick update and I’ll do more when I can. I wanted to let you guys know how Gavin is doing after his second dose of the Pfizer COVID vaccine. He recieved it at …

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I heard back from Gavin’s immunologist

I heard from Gavin’s doctor this afternoon and I’m not surprised by the approach we’re taking. Basically, Gavin’s labs are messed up enough that we need to verify their accuracy. The plan is to redo his labs on Monday. The results will trickle in either that day or the following. If everything is fine, then …

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So Gavin started running a low grade fever tonight

It’s been a really challenging day for about a million reasons. I was going to touch on some of those reasons but yet another issue has made itself known and this is going to be the priority until I know otherwise. Gavin is running what is a low grade fever for him. He’s very much …

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