I received a call from Akron Children's Home Health, the pharmacy we get Gavin's IVIG infusion medication and supplies from. Everything is set and Gavin should have his new medication…
Gavin's supposed to have an endoscopy and a colonoscopy done at Akron Children's Hospital next week. They consider this surgery and refer to it as such, so I'm doing the…
On multiple levels, it's been an absolutely exhausting day. I found myself dealing with a great deal of frustration all morning. I spent hours on the phone trying to get…
I've just spent the last three hours on the phone, bouncing between Gavin's doctor, the specialty pharmacy and insurance. I swear to God, if I had hair, it would be…
In a continued effort to remain positive in an otherwise less than positive situation, I thought I would approach this post a little differently. Rather than focus on what hasn't…
I haven't heard anything about Gavin's IVIG infusion meds yet and he will be missing his sixth infusion in a row on Monday. As a result, Lizze and I are…
Gavin's awesome immunogist just called and wanted to know what was going on. I explained what I was told by the pharmacy and she was frustrated by it as well.…
Until we're given other instructions, we will not be taking Gavin anywhere there are crowds of people. I've left messages once again today in regards to Gavin's IVIG infusion medication…