The best news we’ve had in a month

I received a call from Akron Children’s Home Health, the pharmacy we get Gavin’s IVIG infusion medication and supplies from. Everything is set and Gavin should have his new medication on Thursday morning.

There was a slight delay because apparently, there were special contracts that needed to be signed in order for them to even carry the new medication.

We also have a bit of trial and error ahead of us as well.

They are sending out the tubing they believe is correct for Gavin’s IVIG infusion. The medication is supposed to be infused over a certain period of time. The pharmacist wants to get things down to about sixty minutes per infusion.



If the tubing works as expected, they will send out more. If it doesn’t, we will try a different set.

It has to do with the combination of Gavin’s pump, the new medication, the change in volume and calculations the pump manufacturer provides for different meds.

Gavin’s medication is new and there isn’t a calculation for it, hence, trial and error.

It’s not really a big deal because the tubing will work. It’s just a matter of getting the timing down.

Either way, he should be infusing by lunchtime on Thursday. We’re probably going to count Thursday’s infusion as his Friday infusion because otherwise they would be way too close together. The normal schedule will pick up with his IVIG infusion on Monday.

From there we’ll be back to every Monday and Friday.

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