Autism Archives - Page 56 of 715

A quick update on remote learning and working from home

I was thinking this would be our first full week back at their old school but that won't be until next week due to the holiday. Elliott went back today and Emmett is back tomorrow. I think I already shared that Elliott goes to school Monday - Thursday. Emmett goes Monday, Wednesday and Friday. It's already been a more positive experience than the previous online setup. Elliott is getting much more interaction with his teachers and friends. Emmett's in the same boat. I've overheard Elliott being very involved in class and talking with everyone, much the same way he would if he was physically present. Emmett has been working on assignments on his off days and seems to be doing quite well. Remote learning means you can sometimes do your…

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September 8, 2020

My thoughts / The Did You Knows of Autism

The Did You Knows of Autism (Assumptions)

I've not shared one of these in a long time but I'd like to get back into the habit of doing so. The Did You Knows of Autism are short, shareable, easily digested facts related to autism. Sometimes they're about parenting or other educational tidbits of information based on my personal experience. Other times they're related to quashing stereotypes. Either way, they're always meant to be positive and designed to be shared. The point is to share information so that people can better understand and relate to what autism families experience. Please feel free to share. ☺

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September 7, 2020

My thoughts

I feel pretty good about today

Emmett's first day of school wasn't as smooth as Elliott's but it went okay. The main issue was that we didn't get his information until this morning. Not a huge deal because he was still able to get some assignments done and turned in. It's a three day weekend and we are back at it on Tuesday of next week. I shutdown for a little bit today because I had a massive headache and I'm grateful the kids allowed me to close my eyes for a little while. I'm so stressed out and my head was pounding. I don't like taking a nap while the kids are active but as they get older, they're much more independent. The plan for the day was to get some work done and have…

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September 5, 2020

Gavin / My thoughts

Gavin’s labs came back and it’s mostly good news

Let me start out by stating that I'm absolutely overwhelmed. The last few weeks have been incredibly challenging for me. The last 2 weeks in particular, have been much worse because I've been so worried about Gavin's health. I have an update for you but not really an explanation because I don't know that we really have one at this time. After an enormous amount of frustration, glitches with MyChart, and long phone conversations with the always amazing people at Akron Children's Hospital, I was finally able to get the results from his recent labs. Gavin spent his hurry up and wait time working in his 5D art stuff. ☺ The headache it took to make that happen is due in part to unusual circumstances, HIPPA and technical problems. That…

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September 3, 2020

Gavin / My thoughts

Some of Gavin’s labs are coming in and they’re still very concerning

It's been an emotionally exhausting day. I spent most of today trying to keep myself focused on the things I have control over. Unfortunately, there's a great deal that I have no control over and that sucks. I was very consumed with waiting on Gavin's lab results to come back from yesterday's repeat lab work. You can read the back story here. About 10 am this morning, part of the results came back and unfortunately, they haven't improved. I'm still waiting for the results containing his immunoglobulin levels because that's the big one. It stands to reason that we're likely looking at those results very concerning results being verified. As it stands, we are looking at another day before we get those results back and I can't explain just how…

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September 2, 2020

Gavin / My thoughts

Quick Update On Gavin’s Condition

It's been a long stressful day but when is it not, right? I wanted to drop a quick update on Gavin's situation because I have some news. After a many phone calls and several attempted workarounds, Gavin's new lab orders were faxed to Akron Children's Hospital. By the time we got there, it was pushing 1pm. Gavin did great, as usual and we're currently waiting in the results. It's frustrating because I hate waiting, especially considering the stakes but hopefully, by the time you read this, we'll have some answers. Not much else to say at this point because today has been consumed with getting this addressed. I told you it would be quick.

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August 31, 2020

Gavin / My thoughts

I’m really worried about his test results

We have a rather eventful week a head of us. The direction it takes will largely depend on the results of Gavin's labwork Monday. Background: If you recall, Gavin's labs from this past week were so concerning that we're retesting to make sure they're correct. So much is so drastically wrong that we need to rule out lab error. Gavin's not exeriencing any obvious problems and he's not complaining about anything. With how bad these labs were, he should be in pretty rough shape. Until we know for sure though, we aren't taking any chances and have locked down even tighter. End Background This will go one of two ways. Gavin's labs will either come back normal and we move forward or they will come back problematic and require immediate…

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August 30, 2020

My thoughts

Helping my #autistic son manage his own routine and schedule

One of the things I really need to invest more time into is helping Gavin manage his routine. He does pretty good with major things like brushing his teeth or taking his meds. That's a awesome because those are both very important things. The stuff he really struggles with is everything in between. He so easily loses track or time or gets lost in what he's doing. He's been telling me lately that his imagination takes over. Gavin needs frequent reminders in order to stay on task and not drift too far off course. I mentioned before that I'm using visual prompts and check lists to help him remember but I'm always looking for better ways to help him navigate life. Sure, it's fun laminating things but there's no point…

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August 29, 2020