Read more about the article It’s frustrating but melts my heart at the same time
My thoughts

It’s frustrating but melts my heart at the same time

I had an awful nights sleep last night. Emmett woke up at some point and climbed into my bed. My bed is a huge and he literally has to cling to me like if he let go, I'd disappear. I'm reviewing a brand new king size Purple 4 Hybrid matter with 4 inches of Purple grid and I woke up with back pain because I was twisted into uncomfortable positions by my 12 year old all night. He's been doing pretty good lately but is really stressed out with school and COVID. When he's stressed out, he doesn't sleep well. Of course, his current fever flare doesn't help either. It's frustrating for me because I need to get some sleep and that's difficult when he's clinging to me all night.…

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October 17, 2020
Read more about the article Please keep Emmett in your thoughts and prayers
Emmett John / My thoughts / PFAPA

Please keep Emmett in your thoughts and prayers

I mentioned that Emmett would be home from school today. The reason for that is rather bad fever flare. I'm pretty sure it started on Saturday because that when the physical symptoms began. At first, it was just one sore on the inside of his lip, but as of Sunday evening, he's got several more. The poor kid is in a lot of pain and isn't eating much as a result. He doesn't eat enough on a good day, and this makes things worse. Right now I'm making him milkshakes and mixing SlimFast powder in for some nutrition. These are cold and numb his mouth enough that he can relax a bit. Unfortunately, it doesn't last forever, and he goes right back to being miserable. There isn't much we can…

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January 29, 2018
Read more about the article Emmett’s fever flares may have returned 
Emmett John / My thoughts / PFAPA

Emmett’s fever flares may have returned 

On Saturday night, Emmett began complaining of his mouth hurting. When I checked it out for him, I found a rather large mouth sore on the inside of his lip.  This may end up being nothing more than a random cold sore but Emmett's never had random cold sores. When these painful little things show up, it's always been because he was entering into a fever flare.  He's been really, really grumpy today and hasn't been eating much. All of these things are classic signs of a flare but he hasn't had one since early last year...  🙁  We'll have to see how he's doing in the morning before we know how school will be handled. If he's in pain, we can kiss him wearing shoes and socks goodbye because…

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February 13, 2017