Category Archives: PFAPA


There are few things tougher for a parent than watching their child suffer

“It’s heartbreaking to see him go through all this and know that aside from snuggling him, there’s very little, if anything I can actually do to help.😢”


I feel the only option left is homeschooling but that’s an absolutely horrible idea

I need guidance because I feel like I’m on a plane where something has happened to the pilot and I don’t have the first clue how to keep us from crashing.


I just don’t know what to do anymore

I’m at a complete and total loss here because no one seems to know what to do about this.


Emmett’s likely in another fever flare and this one has been pretty bad

Emmett’s fever got pretty high today and turned his sweetness to pass and vinegar 😦


I’m completely lost and don’t know what to do

I’ve found myself in a position where as parent, I don’t have any idea what I’m supposed to do. I’m frustrated and overwhelmed…


Special Needs Parenting Challenges: Is it a fever flare or illness?

Emmett’s fever cycles seem to be back with a vengeance.. This is so hard to manage because there’s literally nothing I can do and he can’t go to school or therapies… Here’s what’s going on, as well as a brief history of pictured from over the years, documenting the symptoms…


KISS MY DAY GOODBYE: Fever strikes again

      2 Comments on KISS MY DAY GOODBYE: Fever strikes again

These fever flares are killing me but I’m thankful Emmett doesn’t appear to be miserable.


We finally made it to Cleveland for Emmett’s appointment

For anyone tardy to the party, Emmett’s seeing his fever disorder specialist. Read More


An important update on Emmett’s fever cycles

      No Comments on An important update on Emmett’s fever cycles

There’s a pretty important update on Emmett’s fever cycles and what I’m having to do to address their impact on his school attendance. Read More