For the most part, the boys had a really good day. Emmett began struggling after group today for some reason. He had a really good time and made some new friends but when I asked him about how it went, he got really angry.… Read More
There are a great many things weighing on me right now. To be honest, I’m being crushed.
A great deal has to do with everyday life things like providing for my kids, paying the bills and staying on top of the mortgage, of which I’ve fallen behind on. These are the kind of things that lots of people face and while the circumstances surrounding these situations will vary, the impact is probably very similar.
Every single day seems like an endless battle of staying afloat and the weight of all these problems are doing their best to pull me under.
While these are all real problems, most of them have no viable solution at this point. Dr.… Read More
Mr. Emmett is running a fever again. I really shouldn’t even use the word again because it honestly seems like running a fever is the status quo anymore.
I’m at a complete and total loss here because no one seems to know what to do about this.
Physically managing the fever flare isn’t really that difficult. The problem is how the fever impacts his life. School and therapy both have fever policies and while the school is being flexible, they do have their limits.
These limits have to be in place to protect everyone else. I totally get it and completely support it.
Unfortunately, that means that Emmett tends to get sent home from school and has missed therapy for the last 4 or 5 weeks in a row. That presents me with very difficult decisions and I have to somehow manage to find some balance, so Emmett doesn’t lose his placements.
At this point, everyone is working with us but that can only go so far.
In regards to school, I’ve stopped checking his temperature in the morning, unless it obviously needs to be check. Instead I send him to school and let the school send him home if need be. This way, they don’t count as absences and it’s not just me seeing these bizarre, idiopathic fevers.
This weekend Emmett’s fever reached the 103°F mark and that’s something that can’t be ignored. He went to bed tonight with a fever of 102°F and that doesn’t bode well for school tomorrow because I will have to check him in the morning. Even though he’s probably not actually sick, a high fever is still a high fever and it takes a toll on his body.
I really need him to be in school for at least the first part of the day because I have a 10am doctors appointment and I don’t want to reschedule. I guess I could just take him with me but I’d rather not.
Anyway, with summer break approaching, this will interfere with life a little less. That will reduce my stress levels and since he’s not really sick, it shouldn’t slow us down too much.… Read More
Right before dinner, Emmet clocked in at 103°F. I gave him Advil and that broke the fever for now. I’ll have to see in the morning.. I checked him around midnight and he was normal.… Read More
When Emmett came home from dinner with his Mom last night, I noticed that he felt warm. I checked his temperature and he was just shy of 102°F.
Aside from being grumpy, he’s asymptomatic but regardless, the fever is still there.
Assuming this is a fever disorder related fever and he’s not sick or getting sick, this is the longest fever cycle he’s ever had. This has been going on for at least 6 weeks now and I don’t know what to do.
If I take his temperature at random intervals throughout the day, he would likely be running a fever, at least to some degree.
I know this because I see it every day. Even the school is seeing this as well.
He bounces between normal and running a fever all throughout the day but he hasn’t actually been sick since this cycle started almost 2 months ago now.
I’ve had him to his specialist and at this point, there’s nothing we can do.
All schools have policies in regards to fevers and Emmett exceeds the limits of this policy almost every day. The school is working with me on this and have sorta adjusted the policy in regards to Emmett but they can only push it so far.
102°F fever is well outside the adjustments and doesn’t really leave any wiggle room.
In fact technically, a child has to be fever free for 24 hours, without being medicated for it, before they can return to school.
Even if he’s not actually sick, this has to be taking a toll on him.. I feel like shit when I’m running a fever and yes, I know I’m sick when I’m running a fever but just running a fever is exhausting..
I don’t know what to do… I don’t know if I should keep him home or send him because there’s no way to know for sure, if this is a flare or if he’s actually getting sick.
I’m worried and at a complete loss.
Aside from tracking this and following up with his doctor, I don’t know what to do. I hate that I’m facing this alone now because I never have a second set of eyes.… Read More