Category: PFAPA



We’re praying this finally helps Emmett with his pain

Today’s trip to the immunologist was very trying for me personally. It felt absolutely chaotic and frustrating because everyone was experiencing some degree of anxiety. That made them difficult to manage as well as very, very loud. I always find it odd how my kids can be very sensitive to… Read more »



I’m embracing this moment for as long as I can

Emmett is feeling better this morning and that’s awesome. He can’t return to school today though because he has to be clear of a fever for 24 hours and he hasn’t been yet. If he remains fever free at lunchtime, he’ll be good. ☺ Tomorrow we will be at his… Read more »



This is heartbreaking

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Mr. Emmett is home from school today because he’s not feeling well. He’s been struggling with his fever disorder related mouth sores and he’s just reached a point where he’s sick to his stomach. Poor Emmett didn’t sleep much last night and is too much pain to go to school… Read more »



Poor Emmett’s in so much pain tonight

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The results of Elliott’s Whooping Cough test and why Emmett’s really struggling tonight.



We might be approaching the end of the road

This fever flare is driving me nuts. I know it’s worse for Emmett but I’m still having a really hard time getting him to eat anything. He’s had a bit of yogurt, some pudding and I just got him to eat some brown rice. The brown rice was a pretty… Read more »



Special Needs Parenting – What it feels like to watch your kids suffer

I’ve been working for almost a decade to help people better understand what Special Needs Parents go through. Whether it’s Autism, ADHD or even fragile health, there’s a story to be told and insight to be gained by reading it. Every family’s experience can and will be different. Even families… Read more »



Please keep Emmett in your thoughts and prayers

I mentioned that Emmett would be home from school today. The reason for that is rather bad fever flare. I’m pretty sure it started on Saturday because that when the physical symptoms began. At first, it was just one sore on the inside of his lip, but as of Sunday… Read more »


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