So much happened this week and I don’t know where to start

It's been such a really good week. My stress level is relatively manageable, either that or I'm coping better. Either way, it's a win. So much has happened over the last seven days, I'm not even sure where to begin. I guess I'll just start somewhere. There's been a few new beginning this week. Elliott started his first job, and so far it's going great. He seems to really like it, but he's not used to it yet, so at the end of the day he's exhausted. I also started my new consulting gig. Actually, I started both of the new consulting gigs this week, and I love'em both. I've made some new connections, and it's all good in the business department. The other day, I drove Gavin, and Emmett…


#Autism parenting is all about progress not perfection

It's not a huge surprise that Gavin's appointment with his immunologist went well. These appointments rarely go poorly because he's monitored so closely on a weekly basis. Gavin sees his immunologist because he has Common Variable Immunodeficiency or CVID, which put simply, means he lives with a severely compromised immune system. This is a life threatening condition that has no cure. In order to stay healthy, he requires IVIG infusions twice a week and we do those at home. Today's appointment is a follow up. We have to physically check in about every six months and have special labs run. That assumes there aren't any problems between appointment. Anyway, everything went pretty well and Gavin was even able to answer most of the questions on his own. I only spoke…

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We have some difficult decisions about Gavin’s heath to make today

It was a rough night and a challenging morning. It's a big day and it's made worse by my lack of sleep. That being said, we've made it to our appointment with Gavin's immunologist. We actually made it about 20 minutes early as well. Traffic was much kinder to us than I had anticipated. Now we have some very, very difficult decisions to make about the future of Gavin's health.