Major Update on Gavin’s missing medications

Throughout the day, I had about half a dozen different conversations in regards to Gavin not receiving his IVIG medications and supplies. I spoke with his doctor, his insurance case manager and the head pharmacist at the pharmacy we want to switch to for his supplies. 

Let’s get this out of the way first. 

Gavin’s doctor’s office was finally …



That was horrible

We just arrived in Cleveland for Gavin and Lizze’s appointments. The drive was horrible due to the weather and very poor visibility. Things were made worse by our windshield wipers freezing in place once we were on the freeway. 

That was not fun at all. 

We should be on our way home in about an hour or so and I’ve …



We received heartbreaking news about Gavin’s health this morning 

If you follow me on Twitter, you may have seem my Tweet from earlier. For those that don’t, allow me to paraphrase.

As a Special Needs parent to a child with fragile health, I sometimes make the mistake of thinking that things could never get worse. Wrong again. 

Gavin had an appointment with Dr. Reynolds this morning. It was the …



We got some bad news about Gavin and I don’t really know what to do with it

I still need to update you all on Elliott’s dentist appointment today but that will have to wait for now because I received a call from Gavin’s immunologist. 

Gavin’s immunologist likes to call and give lab results personally. It always makes me nervous because usually doctors only call with bad news. 

I’m both confused and concerned at the news I …



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