Throughout the day, I had about half a dozen different conversations in regards to Gavin not receiving his IVIG medications and supplies. I spoke with his doctor, his insurance case manager and the head pharmacist at the pharmacy we want … Read More
We just arrived in Cleveland for Gavin and Lizze’s appointments. The drive was horrible due to the weather and very poor visibility. Things were made worse by our windshield wipers freezing in place once we were on the freeway.
That … Read More
If you follow me on Twitter, you may have seem my Tweet from earlier. For those that don’t, allow me to paraphrase.
As a Special Needs parent to a child with fragile health, I sometimes make the mistake of thinking … Read More
I still need to update you all on Elliott’s dentist appointment today but that will have to wait for now because I received a call from Gavin’s immunologist.
Gavin’s immunologist likes to call and give lab results personally. It always … Read More
For the first time since Gavin lost his immune system, he’s been off IVIG for one whole week. His immunologist wanted me to withhold IVIG this past week and start up again today.
This particular infusion is going extremely … Read More