Hopefully it goes well and without side effects

The boys had a great time at their Grandparents house last night and today. They’ve been rather quiet since they arrived home. I haven’t heard any fighting and that’s awesome.  We’re going to do dinner and then Gavin’s IVIG infusion, …


New reasons for special needs parents to worry about healthcare

My son Gavin, has something called Primary Immunodeficiency. This means that his body doesn't produce enough antibodies to fight off infections. What antibodies his body does produce, are defective. Thankfully, there's a treatment for this life-threatening condition, and it's called IVIG. Gavin receives his …

I had to reapply for @makeawish

I told you the other day that I sent Gavin’s information into Make-A-Wish, after waiting for him to decide he would be okay with possibly having a wish granted.  I replied to the email I received from Make-A-Wish, with the requested information.  …


It sends Gavin into a panic every single time

Gavin’s IVIG infusion is well underway and aside from a few hiccups, it seems to be going well. The hiccups I’m referring to are the result of one of the needles in his stomach leaking. This isn’t a huge deal …


Why Gavin’s important treatment was withheld

With everything that went on Monday, we weren’t able to get to Gavin’s IVIG infusion. He’s supposed to receive these infusions on Monday and Friday, but sometimes it doesn’t always work out.  Getting this done a day later isn’t a huge …


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