Gavin’s having health issues tonight

You may recall that Gavin sorta refused his IVIG infusion this morning, because he had a mission to go on first (see Why I’m worried about Gavin today). We were simply going to do his infusion tonight, because it wasn’t a …


This was a big step forward

Gavin had his IVIG infusion this morning/afternoon. Everything finished up fine, but it took a really long time. What was different about this particular infusion was that Gavin wanted to hangout in his room during the procedure.  This is highly …


Major Update on Gavin’s missing medications

Throughout the day, I had about half a dozen different conversations in regards to Gavin not receiving his IVIG medications and supplies. I spoke with his doctor, his insurance case manager and the head pharmacist at the pharmacy we want …


That was horrible

We just arrived in Cleveland for Gavin and Lizze’s appointments. The drive was horrible due to the weather and very poor visibility. Things were made worse by our windshield wipers freezing in place once we were on the freeway.  That …


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