Category: Common Variable Immunodeficiency



Gavin had a massive, massive meltdown this morning

Gavin slept in this morning which is weird in and of itself. He didn’t wake up until just before I got home from my morning walk. As I walked in the door, Gavin was working on getting his IVIG infusion ready, and it wasn’t going well. It’s been about an… Read more »



Longer needles are needed

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Gavin will be resuming his IVIG infusions this morning. He missed his infusion on Friday cause his supplies didn’t arrive until late and then he ended up in the hospital. We opted to hold off until today because he was in bad shape and when he was getting back on… Read more »



It’s terrifying when your child with #CVID can’t get his lifesaving medication

It’s not like receiving a donated liver or kidney, where his body could reject it. That said, Gavin’s body can struggle to accept the antibodies. He can run a high fever, have seizures, experience anaphylactic shock or an autonomic crises can be triggered.



3 hours of driving for a 20 minute appointment

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It all depends on traffic and how much God is looking to test my sanity.



We got some insanely good news

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I wanted to drop you a quick line to share a bit of insanely good news. Let’s be honest, it’s been a little while since I’ve had some really good news to share. Well, you can reset that counter because I have some good news to share. ☺ Yesterday morning… Read more »



Like we didn’t already have enough on our plate

I received really bad news as Lizze and I were leaving her grandmother’s funeral, on our way to the cemetery yesterday.



It’s really stressful when my son’s medications don’t arrive on time

Gavin is officially out of his IVIG medication and he’s not been able to do his IVIG infusion today as a result. I’ve spoken with the home care pharmacy that’s responsible for delivering these life saving medications and they’re out for delivery today. That’s good to hear, it really is….. Read more »


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