Gavin’s having health issues tonight

You may recall that Gavin sorta refused his IVIG infusion this morning, because he had a mission to go on first (see Why I’m worried about Gavin today). We were simply going to do his infusion tonight, because it wasn’t a …





This was a big step forward

Gavin had his IVIG infusion this morning/afternoon. Everything finished up fine, but it took a really long time. What was different about this particular infusion was that Gavin wanted to hangout in his room during the procedure.  This is highly …





Major Update on Gavin’s missing medications

Throughout the day, I had about half a dozen different conversations in regards to Gavin not receiving his IVIG medications and supplies. I spoke with his doctor, his insurance case manager and the head pharmacist at the pharmacy we want …





We received heartbreaking news about Gavin’s health this morning 

“Right now I’m feeing like my world is crashing down around me. I’m sick to my stomach and I’m strattling a very fine line between bursting into tears just freaking out.”