It’s been such a really good week. My stress level is relatively manageable, either that or I’m coping better. Either way, it’s a win. So much has happened over the last seven days, I’m not even sure where to begin.
I guess I’ll just start somewhere.
There’s been a few new beginning this week. Elliott started his first job, and so far it’s going great. He seems to really like it, but he’s not used to it yet, so at the end of the day he’s exhausted. I also started my new consulting gig. Actually, I started both of the new consulting gigs this week, and I love’em both. I’ve made some new connections, and it’s all good in the business department.
The other day, I drove Gavin, and Emmett to Cleveland to see allergy and immunology. Emmett needed allergy testing because he seems to be dealing with possible food allergies again. The only way to know for sure is to get tested, and he did. Everything came back negative, which is a little weird, but it’s also good news. He did so well with the scratch testing this time around. Total champ.
Gavin was there because he wanted to discuss making changes to his IVIG infusions. He was looking to move back to once a month IVIG infusions in the hospital. He has almost no body fat so placing subcutaneous needles in his stomach is proving problematic.
His doctor doesn’t want him going back to the once a month IVIG infusions because the side effects are a problem for Gavin. The reason we stopped doing them in the first place and switched to at home IVIG, is because his body wasn’t tolerating it well. He would end up in the ER, and it just wasn’t a good thing.
She suggested increasing the dose, and only doing the infusions once per week instead of twice. Before we made any decisions, she wanted labs done.
Fast forward a few days, and I get a call from the doctor. She’s the only doctor we’ve ever had who personally makes calls to patients. Anyway, she explained that Gavin’s labs came back, and his immunoglobulin were pretty low. I believe the numbers are supposed to 700 – 1400 (don’t quote me on the 1400 because it might have been 1200 or 1600, I can’t remember). Gavin’s labs came back, and he was at 710. That I do remember.
It’s not overly concerning at the moment, but it does mean that we aren’t going to make any changes right now. We’ll reevaluate later. Gavin’s definitely disappointed but he also understands. This kid is absolutely amazing.
Emmett is enjoying his summer so far, and making plans with his friends. I’m pretty excited about that.
Gavin is looking at job training, and we should know a bit more next week. He’s excited and I’m excited for him. We do have hang up right now. When I adopted him, all the paperwork was filed for the name change but somewhere in the social security department, his name wasn’t updated properly. When I took him to get his ID, he couldn’t get it because his the name on his birth certificate and social security card don’t match.
It’s frustrating because I’m not sure how to to fix it and the hold times are insane. I tried a few times and just ended up walking away because other thinngs came up that were more pressing. Unfortunately, now it’s really important because he needs his ID for most of what we’re trying to get him setup with. I need to get through to someone and figure out how to fix this.
The local social security office keeps directing me to the Columbus office because whatever the problem is, it’s down there.
This coming week I’ll need to get this figured out. I want Gavin to be getting what he needs to feel fulfilled and he’s been so patient though COVID’s seemingly endless delays.
It’s going to be a relatively busy week already. So far, I have seven meetings, and a few other projects that need my attention as well. I already know the number of meetings is going to grow, I just don’t know what days yet.
A busy work week is a good thing, and I’m grateful for that. I had some office work that needed done and instead of making progress there, I was restoring my brand new desktop because it crashed. That took a little and it’s still not back up and running completely.
Thankfully, I can at least do the invoicing from the app on my phone. The rest I’ll add to my list for Monday.
As I’m reflecting on the events of this past week, I’m looking back on most of it fondly. Lots of new things started this week and it’s reflective of all the progress we’ve been making. I’m back at the gym working out every day, and back to losing some weight again, which makes me happy. Making myself a priority again, is already paying off.
Lastly, I want to wish a happy birthday to my Grandma Gene. I love you Grandma and I miss you. You won’t believe who you share who you share a birthday with… ☺
Hoping to start the new week off on the right foot.