Tag Archives: Special Needs Parenting




The single biggest reason I’m worried about our emergency psych appointment today

Lizze and I reached out to Gavin’s psychiatrist’s office because we’re growing increasingly worried about his worsening level of lethargy. I mentioned eariler that they were our first stop because… Read more »







The #1 reason I’m grateful for days like today

This morning, Gavin had the last IVIG infusion that we have supplies for. Now is when I start to get anxious and stress out because it’s become another episode of… Read more »







What the hell is Common Variable Immunodeficiency?

With all the recent talk surroundingĀ Gavin’s immunological issues, I thought I would put something together that would help to educate those among us who may not know what CVID is… Read more »







The solution to Gavin’s immunology crisis was completely unexpected

We’ve been so stressed out since learning about the GAMMAGARD shortage. GAMMAGARD is the medication used to treat Common Variable Immunodeficiency, of which Gavin has. Basically, GAMMAGARD is donor antibodies… Read more »







We have some difficult decisions about Gavin’s heath to make today

It was a rough night and a challenging morning. It’s a big day and it’s made worse by my lack of sleep. That being said, we’ve made it to our… Read more »


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