One of the things I'm hoping for right now is for yesterday's infusion to help him finally kick this respiratory bug he's had for almost 2 weeks now.

We were at Akron Children's Hospital all day. We got there around 8:30am and finally got home around 5pm..... It was such a long day, full of anxiety, fear, stress and pure emotional drain.

I'm so overwhelmed and can't even explain what I feel right now because my brain is on complete overload and I'm literally shaking.

I have to admit that I'm so stressed out that my chest hurts when I breath. It's all anxiety but it still makes it harder to present to Gavin as though everything is okay and I'm not worried.

I'll be honest, I'm really freaked out. Gavin is scaring me to the point I feel sick to my stomach. He's lost 25+ lbs since June and his diet hasn't been reduced. In fact, it's been increased and he's still losing weight. He weights 110 lbs now and that really scares me.

A few minutes before we arrived at Akron Children's Hospital, Gavin sorta slumped over in the van.  I got him up to the infusion lab and they immediately got his vitals. His BP was low and he's lost another 4 lbs since last month.  He's down to 110 lbs.  He says he's okay but just tired.... The problem is that he's not okay because he's really unsteady and lethargic.  I have no idea what we are going to do at this point.  Right now we are just waiting in his room for the doctor to get here.  This is happening more and more often now. Please keep Gavin in your thoughts.  I think we are going to get him to the ER... This site is managed almost exclusively from my…

Depression causes me to become more easily overwhelmed and can sorta cloud my thoughts. Writing becomes particularly difficult because those clouds make not more difficult for me to find the right words to accurately articulate what I'm feeling.

We've been having tons of issues with Gavin and school. Things have been getting worse lately and Lizze and I are completely overwhelmed. However, today we have some good news and I wanted to share.