Something that I think people often underestimate about special needs parenting is just how exhausting it is.
I can personally attest to how exhausting it is.
In fact, I’m exhausted right now.
Special needs parenting is 25 hours a day, eight days a week and 366 days a year for the rest of our natural lives. It’s all hours of the day and night. Personally, I don’t even remember the last night of uninterrupted sleep we had in our house.
Very few things come easy, and most things are in fact, a constant struggle. Whether it’s potty training or just trying to get a sensory sensitive child to eat, there’s always something that needs your complete attention.
Don’t even get me started on school.
If you have a special needs child, you will likely have to fight, not only for your child’s rights but for the services and therapies they require to learn. Some families are lucky and have an excellent school system but sadly that’s not the case for a large number of others.
Things that most families take for granted, like their kids making friends, being able to express themselves or for that matter even talking, are things that many special needs parents struggle without.
Can you imagine if your child was unable to tell you about what happened at school? Perhaps they don’t feel well or are scared but have no way to let you know what’s going on? Many special needs parents don’t have to imagine because they live with these situations, each and every day.
Special needs parents are constantly on alert, even in the middle of the night. Living a life of hypervigilance is utterly exhausting and stressful.
Trying to live in the moment can be difficult because so many are terrified about what the future holds for the child they love, and that can be all consuming.
I could go on and on because there are so many reasons that special needs parenting is exhausting. Perhaps one of the most exhausting parts of special needs parenting is that fact that the world doesn’t slow down. Not only do special needs parents have to worry about these and many other things, they also have to worry about the same things that everyone else in the world has to.