This post has a very special purpose. It focuses solely on the challenges of being special needs parent. As special needs parents, we all know that the challenges are well worth it and there are many positive as well but the goal here is to help the rest of the world better understand what we go through as parents.
One of the toughest parts of being a special needs parent is trying to get others to understand even a small percentage of what daily life is like for families with special needs children.
It doesn’t matter if it’s Autism, Downs Syndrome, ADHD, SPD or anything else. As a parent, your life is impacted in ways most can’t even begin to understand.
There’s no such thing as a level playing field when it comes to special needs families.
There’s no holiday‘s or breaks. In fact, in many cases, the special needs parent will be doing this until the day they die. They will also spend everyday of their lives worrying about the day they will no longer be on this Earth to care for their child with special needs.
Everything that comes easy to most is a constant struggle for families with special needs children.
It sometimes takes an hour just to get shoes and socks on my youngest and I’ve given up on requiring him to wear clothes while he’s home.
I have to prepare three different meals for each meal of the day because each one of my kids have sensory issues that make it exceptionally challenging to feed them. They of course, don’t share the same challenges and food proclivities, so I have to treat each individually. The kicker is that I will often have to remake what I made because something was wrong with it.
Before you tell me that they’ll eat when they’re hungry, let me ask you this. How hungry would you have to be before your would eat the treats your cat leaves in the litter box? Sounds dramatic but that’s how offensive kids with sensory issues can find their food. They will quite literally starve before eating something they find sensory offensive.
Don’t even get me started on school. Between bullying, IEP’s and ill equipped schools, everything is a battle.
There are no slow lanes in life and regardless of the challenges being faced by special needs families, we still have to play by the exact same rules as everyone else.
We still have the same responsibilities as everyone else. No one cares that you might already be drowning in the overwhelming challenges of day to day life or that your child was hospitalized once again due to their fragile health. There are still bills to pay and jobs to do.
As someone who has experienced this every single day of his life, for the last 15 years, I can tell you that it takes its toll.
It impacts every single aspect of my life. It affects everything from your personal health to your relationships with family and friends. I don’t know how to make that any clearer.
So I thought I would toss each one of you the mic and ask that you share some of the challenges you face in your special needs parenting life. Maybe something that you wish people would better understand.
Together, perhaps we can help the people in our lives to better understand…