Heartbreak: A conversation with my schizophrenic child




Gavin suffers from a disorder known as Schizoaffective disorder. This is kind of a blend between bipolar disorder and schizophrenia. We see way more schizophrenic symptoms than we do bipolar anymore. Gavin has been in a state of psychosis for many months now and shows no signs of pulling out of it.

textgram-2The other night, Gavin and I were playing Minecraft together on the Xbox, as we do on most nights before he goes to bed. It’s something he really enjoys and I can use the game to help teach him things that are harder to teach in real life. It’s just become one of our things. 

While we were playing the other night, Gavin decided to share what had happened back at base.

When I say back at base, it refers to the other side of the portal that Gavin travels through to get to spend time with his friends. If that sounds like a lot to digest, don’t feel bad because I barely follow it myself.

Below is the conversation we had the other night. It gets a little weird and Gavin is very difficult to understand but by clicking play, you will be able to hear the conversation we had. This is safe for work and little ears. You can hear Minecraft in the background, as well as the other boys fighting upstairs.

This will help to provide you with some insight into raising a child with schizophrenia… You may also better understand why this is so exhausting for me as a parent. Keep in mind that he’s constantly talking to Lizze and I about this stuff. It gets pretty overwhelming.

 

[audio-clammr mp3=”https://www.theautismdad.com/audio/Gavin 11.20.16.m4a”]




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10 Comments on "Heartbreak: A conversation with my schizophrenic child"

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Rob Gorski
Member

I’m happy to answer any serious questions pertaining to this topic… ☺

Kayden
Member

could you potentially transcribe the audio for those of us with auditory processing difficulties?

Rob Gorski
Member

I hadn’t thought about that but if I have the time, I’ll try to do that… ☺

Jenette Clay
Member
I listened to this. I know how it feels to sit on your side of the conversation, though not to that degree. I have had those nights, trying to ask the right questions to understand, feeling lost. Loving your child. First, I want to say, your son must be brilliant and you are such a loving father. Next I want to ask, has anyone ever asked you about trying antibiotics for him? I tweeted this article just minutes ago: http://blog.brainhq.com/2015/02/10/researchers-testing-antibiotics-to-treat-schizophrenia-symptoms/ because I was wondering if you’d ever heard of it. I don’t usually like to poke my head into another… Read more »
Rob Gorski
Member

Jenette,

Thank you so much for reaching out. This is such a really tough situation and so few people understand first hand..

I should clarify a couple things based in your questions. ☺

We know there is no infection because Gavin has a severely compromised immune system. He’s on IVIG twice a week and is monitored for infections..

Does that make sense?

Jenette Clay
Member

Yes, it does. I can tell that you’ve been through the wringer and have most likely explored things I haven’t even thought about. Thanks for sharing so some people can try to get a glimpse and others of us can feel not so alone.

Jenette Clay
Member

The most moving aspect is how you enter into his world. You let him talk about those experiences and sort through them. You continue to be connected to him by letting him talk to you about his journey. It’s hard for me to put into words. But you doing this, keeps him from being isolated, keeps him a part of you and the whole family. That is beyond words to me.

Mark Benton
Member
I’ve hardly read any of your posts or blog. But just some potential leads here….. The theory of the brain being affected by antibiotics stems from a variety of possible mechanisms, such as 1) the chemical’s antibiotic action 2) the action of that chemical in another way, e.g. directly on the person’s neurology, chemically or physically, such as the ‘antibiotic’s’ anti-inflammatory effect as described. The antibiotic effect can play on this mechanism: http://www.theatlantic.com/health/archive/2015/06/gut-bacteria-on-the-brain/395918/ which can be researched under ‘hygiene hypothesis’ and ‘Phylosymbiosis’ The chemicals released by the microbes we co-exist with have great, and poorly understood effects on our immune,… Read more »
Zoe
Member

Does Gavin play a lot of Sonic games, or are these things leftover memories from when he used to play Sonic games? I’m just wondering if he does still play, if maybe phasing them out would help or if he would just manifest a new world from say minecraft or something new

Adam
Member

Ever thought of trying to find a comic book artist to sit down and draw out his missions. Maybe making a series of it.
It sounds like an interesting mix of sci-fi and comic genres.
Just a thought from another ASD/Bipolar parent…

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