Read more about the article Things went horribly wrong this morning
Emmett John / My thoughts

Things went horribly wrong this morning

I'm going to keep this super short because I'm exhausted. Emmett woke up and wasn't doing well. We tried for over an hour to help him feel better and nothing worked. He became hysterical as we tried to help him decide what pants he could tolerate. He has a new sore on his upper lip and that has him teetering on the edge to begin with. We know he tried and there wasn't anything that we could do. Our hope is that by Monday he'll be feeling better. For the moment, this has been an unbelievably exhausting morning.

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February 2, 2018
Read more about the article I’m praying there will be 2 kids in the car this morning
Emmett John / My thoughts / Sponsored Post

I’m praying there will be 2 kids in the car this morning

We're hoping beyond hope that Emmett will feel up to going to school tomorrow. He's been slowly doing better as the days go on but mornings are still really tough for him. Getting ready for school is often stressful for him and that will make him more sensitive to the pain. I'm not sure we will be able help him through the morning enough to get him to school. My goal is to not rush him to get ready. I want to try to keep him as calm and stress free as possible because it will get out of control quickly if I don't. Lizze and I will likely have to tag team him but with any luck, I'll be dropping two kids off at school in the AM... ☺

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February 1, 2018
Read more about the article How we’re going to address the problems at school
Inspirational Posts / My thoughts / School Related Issues

How we’re going to address the problems at school

Lizze and I were discussing the school issues that have become an unwelcome visitors in our lives. It's pretty obvious to us that there are no good options because we'd likely be trading one problem for another. What we've decided to do at this point is preserve the current status quo. That being said, we will be working to address the concerns we have by pushing for the school to be open to parental involvement. Currently, there's no PTA and no forum for parents to voice their concerns or have their voices heard. This isn't how it used to be. Before the PTA disappeared, Lizze and I were heavily involved. In fact, Lizze was the PTA President. I think one of the biggest issues revolves around the fact that there…

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February 1, 2018
Read more about the article I wish I could do something to help him
Emmett John / My thoughts

I wish I could do something to help him

The morning was rough. I didn't get nearly enough sleep because I was up with an Emmett who was in a great deal of pain. I let Lizze sleep and she let me sleep in, while she took Elliott to school. Teamwork... ☺ Emmett's in a good mood but at the same time, he's miserable because he wants to eat solid food. I looked at the sores on his lips this morning and it looks like there's another one popping up. I wish there was something that could be done but there isn't. This is one of those things that we don't know much about because it's incredibly rare and there's no research being done as a result. One of my readers brought up something called Magic Mouthwash. I think…

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February 1, 2018
Read more about the article Accepting a Diagnosis
Contributed / My thoughts / Sponsored Post

Accepting a Diagnosis

Being ill is always tough. Facing up to a difficult diagnosis is never easy, but, it's somehow worse, and certainly much harder to come to terms with, when the diagnosis is for your child. No matter how old they are, hearing that there is something wrong with your precious baby is heartbreaking. Here are some tips to help you get through this challenging time, accepting the diagnosis and coming to terms with the new life you are going to live. https://pixabay.com/en/microscope-lab-diagnosis-white-1817641/ Get Angry Whether the diagnosis you face is that your child is always going to struggle with autism or another related condition, or you hear that something went wrong that injured them during childbirth, one of your first feelings will be anger. This is ok. Don't feel like you…

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February 1, 2018
Read more about the article That doesn’t Bode well for the rest of us either
Emmett John / My thoughts

That doesn’t Bode well for the rest of us either

I totally thought Emmett there was a real chance that Emmett would be returning to school this morning. He seemed to be doing better-ish last night and I felt a surge of hope that this flare might be coming to an end. Unfortunately, Emmett woke up about 4 AM and was sobbing as he climbed into bed next to me. All I could get out of him was that his the sores in his mouth were throbbing. Apparently, he isn't doing even a little bit better. I I'm absolutely exhausted but I'm trying to make sure Emmett is as comfortable as possible so he could hopefully go back to sleep. It's going to be an extremely long day for all of us because he's miserable and that doesn't bode well…

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February 1, 2018