Jul 19 2019
Gavin’s been having a difficult morning so far. It was IVIG infusion day again (as it is every Monday and Friday), and it did not go well. Lately, Gavin likes Lizze to place the needles in his belly because they don’t often leak when she does it. Lizze and I are both concerned that Gavin …
Sep 16 2019
In other news, Gavin’s IVIG Infusion went well. I’m still batting a thousand in the IVIG infusions that don’t leak category. Gavin’s happy and it also means less pain for him as well. His infusion went pretty quick today. It took less than an hour in total and that’s always a good thing. Sometimes it …
Feb 25 2019
It was a rough morning in the sense that everyone was dragging. Emmett had a rough time falling asleep last night because he’s got a stuffy nose and while that’s unpleasant for anyone, it’s especially troubling for someone with sensory processing disorder. Lizze got lunches made and I got the boys to school before hitting …
Jan 29 2019
Without going into the backstory again, Gavin is on IVIG twice a week because of his severely compromised immune system. You can read that backstory here. We received a notice from his insurance that they were no longer working with his current, longtime supplier and would be switching to a new company. This is potentially …
Jun 08 2018
Gavin’s been undergoing his IVIG infusion for over five hours now and it’s still not done. This is not a good thing because he’s getting extremely anxious and understandably so. This usually comes down to needle placement and because there’s only so many locations in his belly to place both needles and because there have …
Apr 12 2019
Alright, so we have another little problem. With all the craziness going on in regards to Gavin’s detachment from reality, we overlooked that Gavin’s IVIG infusion supplies haven’t arrived yet. This is not a huge deal at this point, but we’ve been having issues with nationwide shortages of his IVIG medications recently. We’ve had to …
Recent Comments