This was once my worst fear

It’s hard to believe that we’ve been dealing with COVID for almost 3 years now. So much has changed during this time. COVID has become a part of everyday life…

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The coolest thing happened today

As the title states, the coolest thing happened today. I've been talking about Gavin's ever-growing level of independence, and today marked a big first for him. Gavin gets his IVIG…

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Fantastic news

In the spirit of trying to get back into writing more, I wanted to share some positive news tonight. First and foremost, the best thing that happened today is that…

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A fun little update

It's been an interesting weekend thus far. The boys came home yesterday from a visit with their Mom. They all had a great time and I'm so glad we were…

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This isn’t supposed to happen

It's Gavin's 21st birthday and we were off to a good start. His IVIG Infusion supplies showed up and he immediately went to work. Whenever he gets his supplies, I've…

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