Gavin’s IVIG infusion is NOT going well today

Gavin’s been undergoing his IVIG infusion for over five hours now and it’s still not done. This is not a good thing because he’s getting extremely anxious and understandably so.

This usually comes down to needle placement and because there’s only so many locations in his belly to place both needles and because there have been roughly 5,826 total needle sticks into his belly thus far, scar tissue is a problem.

I suspect scar tissue is the leading cause of today’s complications.

As a result, what should take roughly an hour is dragging out into almost six hours. There’s nothing we can do but let it run its course.

The IVIG Infusions are absolutely crucial to Gavin’s survival. We can’t just write it off because it’s taking too long.

Hopefully, this will finish up and we can put another successful infusion behind us.


    • Amanda on May 24, 2019 at 2:52 am
    • Reply

    As someone with CIDP (Chronic Inflammatory Demyelinating Polyneuropathy), I also must have IVIG and understand the woes of bad infusions. For what it’s worth, know your post made me feel more understood and less alone on a rough infusion week. Thank you for sharing your life.

    1. Hey Amanda,

      I’ve not heard of CIDP but I do know all about IVIG infusions. We’re actually going to be starting Gavin’s in a few minutes. You are most definitely not alone in that area. Thanks for sharing. It’s really nice to meet you. :_)

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