Gavin’s #IVIG infusion supplies never showed up and that worries me

Without going into the backstory again, Gavin is on IVIG twice a week because of his severely compromised immune system. You can read that backstory here.

We received a notice from his insurance that they were no longer working with his current, longtime supplier and would be switching to a new company. This is potentially very problematic because this needs to run like a well oiled machine or there can be delays in his deliveries and that could potentially be life threatening.

Lizze and I haven’t even had a chance to call about this and we’re already having a major problem. Gavin supplies were due to arrive last Friday and they never did. They also never arrived today and that means he’s missed his infusion.

He’s missed quite a few infusions in the past but never on purpose. There were medication shortages or supply interruptions behind those. This time, I can only assume that it’s related to the change and I need to call someone and get this fixed but I’m not sure who to call.

I’ll probably call his current supplier and find out what they know. I don’t know the name of the other company and have no contact information either.

Gavin doesn’t like missing his infusions. It’s important to remember that he’s 19 on the outside but between 4 and 6 years of age on the inside. He gets scared and will keep asking about the delay or when his supplies will arrive.

I fucking hate bureaucracy because changes like this can create turmoil and never go smoothly. I need to figure out what’s going on today because he cannot miss these infusions.

Rob Gorski

Full time, work from home single Dad to my 3 amazing boys. Oh...and creator fo this blog. :-)
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Eleanor Lawrie

Such gaps in the care of delivery of meds is not excusable. Don’t these people have consciences or brains?


I hope everything gets straightened out. BTW, have you all tried to get guardianship for Gavin? Isn’t it potentially a problem if you don’t? Just wondering. I talk about your family with my husband and he wishes we lived close by so he could help. And my sweetie has been having health stuff although he’s on an upswing.

(Oh, I think I mentioned I had knee replacement surgery? It’s pretty darn grueling. A week of pain and no sign of let-up. I’m actually trying my TENS unit on the muscles around the knee and it seems to help.)


Is this the sort of task that Lizzie could undertake?? Surely it could be done from bed which takes stress from you. ???


But I think Sophie’s point was had Lizzie taken care of this you wouldn’t need to fix it. Then that would be one less thing on your priority list as you mentioned the other day in one of your posts. I understand that she is in pain with migraines, but this easily should have been something she can take care of to help you out