After a physically and emotionally draining day and a restless night reality is beginning to set in. Right now I feel kind of numb and disconnected. My head is swimming with thoughts and fears about this new direction our journey is taking us on. I don't know where we are going now. I've lost all sense of direction. For the longest time, we have been fighting the same exact fight, day in and day out. We never really won the battle but we always lived to fight another day. Some might call that in and of itself a victory. Perhaps under better circumstances I would as well. However, right now I'm just Lost and Tired. I'm completely overwhelmed by what I know lies in front of us and terrified of…

Childhood disintegrative disorder: Very Concerning News   I'm going to keep this short as I'm completely drained at the moment. As you are probably aware, we were at the Cleveland Clinic this afternoon in order to get an evaluation for childhood disintegrative disorder. If you new and need to get caught up, see this post and you'll pretty much be up to speed. We didn't have to wait very long after we arrived to be seen. Gavin was however, very.......um.....talkative. Honestly, he just would not stop talking and it was mostly random, unrelated thoughts. When we met with the pediatric neurologist, she didn't seem to know why we were there. I was a bit confused by that but she was very interested so everything was okay there. We went over Gavin's entire life.…

The Serenity Prayer seems to be broken for me today.  I've said it over and over today but it doesn't seem to help.  I say that because Gavin is still driving me crazy.  Let me clarify,  Gavin's behaviors are driving me crazy.  Just so we're clear.  :-) I'm now in the market for an "easy button".  Maybe that will help. - Lost and Tired Post by Wordpress for Android via Nexus S 4G without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day :)

We have arrived at the Cleveland Clinic. Now we wait and register. Gavin is on edge and struggling to maintain himself,  if that even makes sense.  He's talking nonstop and can't sit still.  I foresee a meltdown in our future.  I know he's nervous but there is not anything we can do to settle him down.  I think we will have to power through it and hope for the best. Kinda like ripping a bandage off.  - Lost and Tired Post by Wordpress for Android via Nexus S 4G without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day :)

  Childhood disintegrative disorder: Our Journey Begins   Shortly after noon today we will begin our journey to discover the truth behind what's happening to our oldest son, Gavin. I'm scrambling today to get as many records as possible on such short notice. I'm really nervous about today and I'm not entirely sure what to expect.  We've been to the Cleveland Clinic countless times already but this time is different. Honestly, if we discover that Gavin does indeed have childhood disintegrative disorder, it won't really change anything.  I mean to that we will be dealing with things we have already been dealing with, only now we would know what to call it. Does that make sense? Getting mentally prepared for a childhood disintegrative disorder evaluation Because this all happened so quickly, we have not…

It's been a while since Emmett has worn a shirt long enough for me to get a picture.  Today we make our triumphant return.  So without further delay,  here is Emmett John's shirt of the day. - Lost and Tired Post by Wordpress for Android via Nexus S 4G without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day :)