Read more about the article Dear God, I’m not sure how much more I can take right now
Akron Children's Hospital / Cardiology / Gavin / My thoughts

Dear God, I’m not sure how much more I can take right now

It's been a rough week and yesterday, we lost our 3rd pet to cancer in less than a year. The kids are devastated and everyone's a mess. We did manage to get the boys to school but not without a great deal of effort, which pretty much drained us of anything even resembling energy before the day even began. With that in mind, you can probably understand why we're so stressed out about Gavin's appointment today. Gavin has a solid mass on his right forearm and it's concerning enough that his doctor sent him for an ultrasound, which is being done in about an hour. We scheduled this about a week or so ago and it's been a long wait. The mass in his forearm isn't a lymph node and…

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October 11, 2018
Read more about the article Things have gotten so much more complicated
Akron Children's Hospital / Cardiology / Gavin / My thoughts

Things have gotten so much more complicated

Before I go into anything, I want to begin by saying that Gavin's echocardiagram looks good. Everything appears to be normal and that's really, really good news. Gavin did really well with the testing and was very cooperative. He even tried to carry on conversations with the staff. It was sorta awkward and unrelated to anything that was happening but I love that he tries. ☺ The cardiologist and his staff were amazing. They took all the time they needed to be thorough and make sure we covered everything. You have to understand something about Gavin. He has an insanely long and incredibly complicated medical history. It's very difficult for anyone to sorta jump in this late in the game and hit the ground running. The title indicates that things…

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June 7, 2018
Read more about the article Returning to Cardiology at @AkronChildrens Hospital today
Akron Children's Hospital / Cardiology / Gavin / My thoughts

Returning to Cardiology at @AkronChildrens Hospital today

Gavin and I will be heading off to Akron Children's Hospital once again today. We were able to get an immediate appointment in cardiology and that's crazy fast. This is a very important follow-up in regards to Gavin possibly having Marfan Syndrome. We've been down this road before but the doctors at Akron were very concerned about how Gavin physically presented and wanted him to have an echocardiogram before we proceed with his scopes. I'm not sure he will get his echo today but we're seeing the cardiologist in order to figure out how to proceed. Gavin's not nervous because he doesn't understand what's going on but he knows there won't be any needles. The echo is noninvasive and he's had a few of them done already. We just need…

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June 6, 2018