Search Results for “Autonomic crisis”

150 results for Autonomic crisis

We had a really bad night

It’s 3am and I’m still awake because the boys are struggling after a brief visit with their mom. Elliott managed to fall asleep, but Emmett had a nightmare, and refuses to go back to bed for fear it’s going to happen again. Then of course, there’s Gavin. Poor Gavin had a particularly bad night. He …

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A Birthday We Almost Didn’t Get To Celebrate

Today is a big day in The Autism Dad household because Gavin turns 20 years old. This would be a milestone birthday on its own but for us, it’s more than that. For the last decade or so, Gavin’s health has become very fragile. I recently wrote all about that and you can click here …

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I want off the ride but it just never ends

Elliott and Emmett are on the mend and doing much better. I woke up this morning with a pounding headache and spent most of the day, unable to get out of bed for very long. I think whatever this is, just hit me differently than it did the boys. Unfortunately, about 7 PM this evening, …

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The truth is sometimes I don’t want to remember

My experience with Wishes Can Happen this morning was quite profound. I’m completely emotionally drained and physically exhausted. At the same time, it was for a very worthwhile and and well worth the fallout. I’m not sure if people understand how difficult it can be to talk about one of the most horrible thing any …

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1 phone call has sent me into a complete panic

I wrote about frustrations and explanations for why guardianship hasn’t been completed for Gavin. I was explaining how things keep coming up that force us to reprioritize everything. See: I’m going to need an attorney. Not twenty-four hours go by and we’re slammed once again, with yet another potentially life threatening issue. I received two …

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The last time we were here, we received devastating news

Today is going to be one of the biggest days we’ve had in awhile, at least as far as Gavin and his health are concerned. Gavin finally gets back into Gastroenterology. We’ve finally come full circle and I’ll explain why. It’s been awhile since he’s been seen and that’s only because we were basically overrun …

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This is what’s going to happen at the @ClevelandClinic today

Here’s the game plan for today. Shortly after taking the boys to school, we have to get Gavin to Dr. Reynolds for a follow-up and to discuss how he’s doing since lowering the Clozapine dosage. The appointment is pretty early so we should be his first or second patient, meaning it won’t take all day. …

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I’d rather not spend the money but I’m too tired to care

I had a really hard time falling asleep last night. I ended up finally crashing around 5:30 AM and for those wondering, that puts me at a significant disadvantage going into the day. I was able to get about 4 hours of sleep because the boys slept in. Super grateful for that. The goal for …

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