Today really sucked. Gavin crashed during his #IVIG infusion and I was really scared.
156 results for Autonomic crisis
Nov 18 2013
Update to Gavin’s Autonomic Crisis: 11/18/2013
Aug 30 2013
Autonomic Crisis: Hanging in there
We survived the night. Gavin is actually still sleeping and slept straight through the night. There were several doctors that came in throughout the night to ask questions and examine Gavin. He’s been doing a lot of coughing, his color is still off and he’s sweating. The blood pressure machine has been having a really …
Aug 29 2013
Autonomic Crisis: Last Update for 8/29/2013
First of all, I want to thank all of you for your thoughts and prayers today. This has been a really, really long day. Gavin has had the last of his meds for the night and is finally asleep. He’s doing about the same, which is okay but still concerning. We’ll have to see how …
Aug 29 2013
Autonomic Crisis: Admitted (8/29/2013)
Gavin is in his room now and officially admitted. There’s too many weird things going on to be comfortable sending him home, without watching him overnight at the very least. Lizze and I decided that she would go home and I would stay this time. Staying would take way too much out of her and …
Aug 29 2013
Autonomic Crisis: Change of Plans (08/29/2013)
As we were preparing to be discharged, another doctor came into the room and wanted to talk with us about what was going on. Because they never see anyone like Gavin, they are relying on how we feel about the situation. To be completely honest, I’m uncomfortable with Gavin being discharged because this doesn’t feel …