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His #IVIG infusion was a disaster this morning and here’s why

His #IVIG infusion was a disaster this morning and here’s why

Gavin's been having a difficult morning so far. It was IVIG infusion day again (as it is every Monday and Friday), and it did not go well. Lately, Gavin likes…

Continue Reading His #IVIG infusion was a disaster this morning and here’s why
Why is Gavin struggling with his #IVIG infusions lately?

Why is Gavin struggling with his #IVIG infusions lately?

It was a rough morning in the sense that everyone was dragging. Emmett had a rough time falling asleep last night because he's got a stuffy nose and while that's…

Continue Reading Why is Gavin struggling with his #IVIG infusions lately?
Gavin’s #IVIG infusion supplies never showed up and that worries me

Gavin’s #IVIG infusion supplies never showed up and that worries me

Without going into the backstory again, Gavin is on IVIG twice a week because of his severely compromised immune system. You can read that backstory here. We received a notice…

Continue Reading Gavin’s #IVIG infusion supplies never showed up and that worries me
You won’t believe where we found his missing #IVIG Infusion supplies

You won’t believe where we found his missing #IVIG Infusion supplies

After some serious searching in every conceivable place, we finally were able to locate most of the missing supplies. We found 4 sets of tubing and 2 needle sets underneath…

Continue Reading You won’t believe where we found his missing #IVIG Infusion supplies
Gavin’s #IVIG infusion was a very frustrating experience today

Gavin’s #IVIG infusion was a very frustrating experience today

So Gavin's medication arrived. We went through the newly received supplies and figured out how to draw up the new solution. Previously, we were using 3, 10cc vials for a…

Continue Reading Gavin’s #IVIG infusion was a very frustrating experience today
Gavin’s IVIG infusion is NOT going well today

Gavin’s IVIG infusion is NOT going well today

Gavin's been undergoing his IVIG infusion for over five hours now and it's still not done. This is not a good thing because he's getting extremely anxious and understandably so.…

Continue Reading Gavin’s IVIG infusion is NOT going well today
Gavin’s IVIG infusion is NOT going well

Gavin’s IVIG infusion is NOT going well

Gavin's IVIG infusion is not going well this morning. For some reason, we can't get any flow and I'm having to force the solution through the tubing manually. It works…

Continue Reading Gavin’s IVIG infusion is NOT going well
His IVIG infusion had him in tears tonight

His IVIG infusion had him in tears tonight

We officially put Christmas behind us this evening and began the sorted journey of getting back to our normal routines. In Gavin's case, that meant he had to do his…

Continue Reading His IVIG infusion had him in tears tonight
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