It's been a difficult day because Gavin is definitely struggling but it's sort of a mixed bag. I'll give you an example. I mentioned to him last night that he…
We have nothing on the schedule for today, aside from the activities that happen every Friday. The kids have school, and Gavin has his IVIG Infusion. Everyone is dragging this…
For the last month, we've been struggling with Gavin's IVIG Infusions due to a shortage of supplies. It wasn't a huge deal because we had them send out the missing…
We've had a pretty decent morning. I was able to sleep in because once again, Lizze never fell asleep. She was still awake when the kids woke up and let…
Gavin's IVIG infusion supplies arrived but didn't arrive until dinner time. I had Gavin immediately put his infusion together and get it going. While he was doing so, he began…
It's Monday and that means Gavin should be receiving his IVIG infusion. In fact, it should have already been done. Unfortunately, we're still missing supplies. I talked about this last…
Gavin is checking all the boxes today in regards to being challenging. We've had one issue after another leaving Lizze and I frustrated. After the issues with his IVIG infusion…
Gavin had a very rough morning. He was struggling and that was even more apparent when it came to his IVIG infusion. I'm not sure where his head was at…