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The #1 reason I’m so angry tonight

I'm trying to do many things right now and one of them is fight off my anger. I think one of the reasons I do as well as I do…

There are 14 reasons why I can’t stop worrying right now

I've spent the morning on the phone, trying to get ahold of the pharmacy responsible for delivering Gavin's IVIG infusion supplies. I'm not content waiting to find out when his…

This is life threatening and he needs his treatment

It's now Tuesday, July 3rd and it's been three weeks since we first learned about the nationwide shortage of GAMMAGARD. Gavin recieves at home IVIG every Monday and Friday for…

The Good News – The Bad News – The MASSIVE Meltdown

Let's cut to the chase and get the good news out of the way. I'm really hoping to get back on track, as we make our way through the weekend.…

He’s almost missed 3 in a row and I’m worried

We are very quickly approaching the Gavin hasn't had an IVIG Infusion in over a week time frame and that's making me exceptionally nervous. Since his first infusion all those…

2 very important, but slightly delayed updates

I meant to share this eariler but frankly, it still isn't finalized and nothing has actually changed yet. That said, I finally heard back from Gavin's immunologist about the issues…

We keep trying and that has to count for something, right?

So far, this is summer break has been pretty decent. We've been trying to spend as much time outside of the house as possible and because we can't spend that…

I haven’t written cause I’m not doing so well

It's been a couple days since I've published anything about anything. There are a few reasons for that. The main reason however, is that I'm not doing so well right…