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It’s 4am and sleep is still elusive

OMG...... It's so incredibly and cruely ironic that all I look forward to doing during the day is going to sleep and yet when the time comes, I can't. Lizze…

Okay, so it appears that Gavin’s sick O_o

It appears that Gavin is sick. He's not supposed to be but when has his body ever followed the rules? He's says that he feels fine but he has rather…

Medicating My Son: A peak behind the curtain

I wanted to give you all a peak behind the curtain, so to speak. Every Monday night, we have to refill Gavin's pill dispenser for the week. We go one…

The psychotic break

Today was a really weird day. I'm not sure how to describe Gavin right now. I could say weird and that would absolutely fit but it seems a bit harsh.…

Did you know that Gavin’s immune system is severely compromised?

Shortly after noon, Gavin will be in the outpatient infusion lab at Akron Children's Hospital. He will be receiving his IVIG infusion for this month. This was originally scheduled for…

What does this week hold for the Lost and Tired family?

To the best of my sleep deprived knowledge, this is going to be a relatively slow week. I'm knocking on wood as I say this because I don't want to…

Thank you @AkronChildrens Hospital this warmed my heart

Take a look at what is being done for kids at Akron Children's Hospital. How cool is this? Very if you ask me. This is where Gavin is once a…

Good morning @AkronChildrens :-)

In a few minutes, assuming I can actually get my kids to cooperate, we will begin the scramble to get Elliott to school and Gavin to his IVIG infusion. I…