Maybe this is why I didn’t sleep well?

The younger boys are bouncing off the walls today.  They're getting along pretty well but they are in full on ADHD mode.. lol I don't know what kept me from sleeping well last night but this might have something to do with it.  These two have been super clingy lately. I'm literally hanging off the side of the bed and Emmett's legs are laying across mine. It was a rough night but the boys let me sleep in a little bit and that really helped.  😩

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HEARTBREAKING: I feel like I’m torturing my son :(

Gavin finished his second IVIG infusion into his thigh on Friday.  It's now Sunday and he's still having a hard time walking.  😕 He's been on motrin every 8 hours to help with the pain.  A couple readers have asked about a port.  A port is a semi permanent access point, that provides direct venous access.  While I understand why people are asking about it, it's not an option and here's why.  Gavin's infusions are subcutaneous, meaning the medicine goes directly into the fatty tissue and is absorbed.  A port would be useless for this type of infusion.  There are a couple of options I can think of but it's basically just picking the best of the bad ideas but here they are. 1) We could just continue using his…

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They are finally asleep :)

They are finally asleep and I'm gonna make myself a sandwich (or two, cause it's been that kind of day) and chill out.  Maybe catch up on a few shows and perhaps find myself in bed at a respectable time.  Who knows,  stranger things have happened.. ☺

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TGIB: Thank Goodness It’s Bedtime

I love my kids more than anything in the world but with that said, they are driving me crazy tonight.  Elliott has no impulse control tonight,  not that he ever really has a surplus of it but still.  Emmett just sorta tuning the world out and so I'm repeating myself,  over and over again,  just to get his attention.  As a result of me pondering my own sanity,  I came up with TGIB or Thank Goodness It's Bedtime... That pretty much sums things up for right now.  Bedtime is quickly approaching and I can finally see a light at the end of this very long tunnel today...  ☺

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Getting my kids with #Autism to eat is so difficult

Lately, it's been more difficult than ever to get Emmett to eat or drink anything.  I really try to accommodate his needs but it's not easy or cheap.  This goes way beyond picky eating and is sensory related, not to be confused with a child being difficult. I did get Emmett to eat some sausage tonight and that's pretty much the bulk of what he's eaten today.  He had a granola bar earlier and I had to mix up some Gatorade, just to get him to drink something.  He was getting dehydrated and while Gatorade is full of sugar, it's something. I don't make a huge deal out of it because I don't want to pressure him and make it worse.  I can go grocery shopping in about a week…

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