Dare I say it?

Dare I say it? It seems like we're starting the week off in the right foot. Everyone is relatively cooperative and in a halfway decent mood. The only thing on the agenda for today is taking the car in and getting an estimate on the cost of repairs from the bizarre damage that was inflicted while it was parked in front of our house. Hopefully that will go smoothly. On a side note. I scoured through 240 hours of security video to see if I could figure out what happened to the car. Unfortunately their was a glitch in the camera and I lost most of last weeks footage. Either way, we should hopefully have a check cut today in order to cover repairs, minus our deductible of course....

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We all get a break from each other today

The boys are going to spend some time with Lizze's parents today. This is good for the boys and good for us. It's good for all parties involved. ☺ Over the last few weeks, we've not had a break from the kids and they've not had a break from us. A little distance will be a positive thing. I don't think Lizze and I have any plans because she's still sick and feeling like poo. Sleep is most likely what's on the agenda for us. I had nightmares all night for some reason and feel like I didn't get any sleep. I'm also thinking that we need to get Lizze in to the doctors in order to make sure she's okay. I'm getting worried at this point.

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I feel so helpless

I'm really getting worried about Gavin. He's definitely slipping in several key areas of his life, despite how hard I know he's trying. 🙁 It breaks my heart to see him struggle the way he does. Saturday was a ton of repetitive talking and question asking because he couldn't remember a great of what was going on. I'm not sure how else to explain it. He would ask a question, to which he'd already been told the answer (often several times), and when I answered him again, it was like the first time he was hearing it. I feel so helpless because there's nothing we can do to prevent, slow down or put a stop to this downward spiral of cognitive ability.

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Maybe it’s a #Depression thing

My major accomplishment today is doing Gavin's IVIG infusion. I'm gonna be honest and say that the bar is set pretty low at the moment. I'm feeling rundown and sorta just blah.. Maybe it's a depression thing or maybe it's because everyone's been stick and it's taking a toll. Either way, I'm going to push myself to get some things done around the house today.. ☺

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Now his mattress is uncomfortable

It was a rough night because Emmett isn't comfortable for him anymore. He says it hurts his ribs. I'm not sure what that means or how that's possible, but it seems to be a real problem. I'm thinking it's sensory related, that much is obvious but what I don't know is why now? It could be as simple as too much change in a short amount of time. If you think about it, he slept in four different beds while we were on vacation. Maybe that messed him up just a bit?

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Gavin’s not doing so well and here’s what’s going on

I was running some errands yesterday and Lizze called me. She was concerned because she's noticing that Gavin's appearing to be more confused than he normally is. I don't remember exactly what she said had happened but I've noticed it as well. In the morning, I'm going to call Dr. Reynolds because I don't know if this is related to the changes in his meds or if this is a natural trend that would be happening regardless. Some of the things I've been noticing is how much he struggling with very simple tasks. We've been avoiding assigning complicated or multipart tasks to Gavin because they are simply outside of his ability. Lately, one step tasks have been proving to be problematic. Yesterday, I handed Gavin a replacement toothbrushe and asked…

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A tour of our Give Kids the World condo (@GKTWVillage)

I meant to share this eariler but it was on a different phone and I just dug it out. This video is a quick tour of the condo we lived in for six days while we stayed at Give Kids the World Village in Kissimmee, Florida. Perhaps someone will be heading down and would like to know what to expect. Maybe you just want to see where we stayed. Either way, here you go.. ☺ https://youtu.be/jtko4TVWcfU

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