Gavin’s not doing so well and here’s what’s going on

I was running some errands yesterday and Lizze called me. She was concerned because she’s noticing that Gavin’s appearing to be more confused than he normally is. I don’t remember exactly what she said had happened but I’ve noticed it as well.

In the morning, I’m going to call Dr. Reynolds because I don’t know if this is related to the changes in his meds or if this is a natural trend that would be happening regardless.

Some of the things I’ve been noticing is how much he struggling with very simple tasks. We’ve been avoiding assigning complicated or multipart tasks to Gavin because they are simply outside of his ability. Lately, one step tasks have been proving to be problematic.

Yesterday, I handed Gavin a replacement toothbrushe and asked him to please put it in the bathroom. I thought that a simple and straightforward but he struggled with it.

He reached the top of the stairs and stopped. The look on his face was that of someone who had no idea where they we or what they we doing. Gavin knew where he was but he had no idea what he was supposed to be doing. He asked me what he was supposed to be doing and got upset with himself for not remembering.

I always tell him that it’s okay. If he doesn’t know or remember something, he needs to ask. I’m totally okay with his asking, rather than beating himself up because he can’t remember or he’s confused about something.

This is most likely just part of his journey and not medication induced. Childhood Disintegrative Disorder is a bitch of a disorder and watching Gavin deteriorate is beyond heartbreaking. It’s absolutely soul crushing and there’s nothing that can be done. There’s no treatment or cure for Childhood Disintegrative Disorder and the outcome is always a bad one.

We’ll see what Dr. Reynolds has to say and go from there. 😔

Rob Gorski

Full time, work from home single Dad to my 3 amazing boys. Oh...and creator fo this blog. :-)
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