Jan 08 2022
As the title states, the coolest thing happened today. I’ve been talking about Gavin’s ever-growing level of independence, and today marked a big first for him. Gavin gets his IVIG Infusion supplies delivered every month. He organizes them into kits and even does the infusions on his own. I have almost zero involvement in the …
Jan 29 2021
It’s been kind of a whirlwind day in The Autism Dad household. I had 2 interviews scheduled this afternoon and ended up having to reschedule one of them for a later date. I hate inconveniencing my guests but it was unavoidable. Eariler this week, I received the callback I had been waiting for in regards …
Jan 18 2021
It’s Gavin’s 21st birthday and we were off to a good start. His IVIG Infusion supplies showed up and he immediately went to work. Whenever he gets his supplies, I’ve taught him to put together kits containing everything he needs for each infusion. This serves a dual purpose. It helps him to learn how to …
Sep 02 2020
It’s been an emotionally exhausting day. I spent most of today trying to keep myself focused on the things I have control over. Unfortunately, there’s a great deal that I have no control over and that sucks. I was very consumed with waiting on Gavin’s lab results to come back from yesterday’s repeat lab work. …
Aug 31 2020
It’s been a long stressful day but when is it not, right? I wanted to drop a quick update on Gavin’s situation because I have some news. After a many phone calls and several attempted workarounds, Gavin’s new lab orders were faxed to Akron Children’s Hospital. By the time we got there, it was pushing …
Aug 30 2020
We have a rather eventful week a head of us. The direction it takes will largely depend on the results of Gavin’s labwork Monday. Background: If you recall, Gavin’s labs from this past week were so concerning that we’re retesting to make sure they’re correct. So much is so drastically wrong that we need to …
Aug 29 2020
I heard from Gavin’s doctor this afternoon and I’m not surprised by the approach we’re taking. Basically, Gavin’s labs are messed up enough that we need to verify their accuracy. The plan is to redo his labs on Monday. The results will trickle in either that day or the following. If everything is fine, then …
Aug 27 2020
I’m going to make this quick because my brain is completely fried and the rest of me is equally as exhausted. Gavin’s labs came back today and some of the results appear to be very concerning. The reason I say appear to be concerning is because I’m not a doctor and I have only a …
