Tag Archives: CVID




The single biggest reason I’m worried about our emergency psych appointment today

Lizze and I reached out to Gavin’s psychiatrist’s office because we’re growing increasingly worried about his worsening level of lethargy. I mentioned eariler that they were our first stop because… Read more »







The #1 reason I’m grateful for days like today

This morning, Gavin had the last IVIG infusion that we have supplies for. Now is when I start to get anxious and stress out because it’s become another episode of… Read more »







The solution to Gavin’s immunology crisis was completely unexpected

We’ve been so stressed out since learning about the GAMMAGARD shortage. GAMMAGARD is the medication used to treat Common Variable Immunodeficiency, of which Gavin has. Basically, GAMMAGARD is donor antibodies… Read more »







There is no cure for what my oldest son has but we keep pushing forward

Eariler today there was a knock at the door. It was Akron Children’s Hospital delivering Gavin’s IVIG infusion supplies. I guess I didn’t realize it was already that time of… Read more »







It was a disastrous morning for Gavin

      1 Comment on It was a disastrous morning for Gavin

It’s been a really rough morning. I’ve been fighting off a stomach bug for most of the week and it’s not been pleasant. I’ve actually not been eating much, so… Read more »