Read more about the article I think we have a good day on our hands :) 
My thoughts

I think we have a good day on our hands :) 

It was a really rough night for me but Lizze took care of everything this morning and sent me to bed.  Both the boys made it to school. We weren't sure how that was going to play out.  We were supposed to be in Cleveland but Lizze rescheduled it because I was too exhausted to make the drive.   I'm feeling much better and Gavin is at Grandma's, so we're going to try and take care of any Christmas shopping that we can, while we can.   While we're on a mission, this will also be like having time to ourselves.  I'm feeling really positive about today.... ☺ 

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December 1, 2016
Read more about the article It’s 3am and I’m up with a sick kid
Elliott

It’s 3am and I’m up with a sick kid

Elliott came into our room about 3am because he wasn't feeling well. He's getting whatever Emmett had and has so much drainage that he feels like he's going to puke.  We're currently camping out on the couches in the living room because he can sit up and try to sleep more comfortably.  I don't know why this means for today because Lizze and I are supposed to be at the Cleveland Clinic mid morning...   Hopefully, Elliott will feel better in a few hours... 

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December 1, 2016
Bullying / Elliott / My thoughts / School Related Issues

The letter I sent to my son’s teacher about him being bullied at school

In the ongoing issue of Elliott being bullied by a kid in his class, I sent the below message to his teachers after learning that these things are still happening.   I have great respect for these teachers and I know their job is not easy. At the same time, it's their responsibility to ensure the safety and wellbeing of those in their care.  I've spoken to the school several times about this issue and it remains a problem. I wanted to make myself heard and ensure that I got my point across without losing my cool...  I don't understand why they have to witness something they know is happening, in order to do anything meaningful about it....  I'm disturbed to learn that xxxxxxx is still a problem.  Elliott says…

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December 1, 2016
Gavin / My thoughts

Applying for Make-A-Wish is breaking my heart

I'm feeling a great deal of mixed emotions tonight as I write this entry. Lizze and I finally sat down today and began the application process to have Gavin get a wish granted by the Make-A-Wish Foundation.  One of Gavin's specialists have been encouraging me to do this but I hadn't until today.  During the separation, things were really hard and I was struggling to keep the boys above water. When Lizze moved back home, we began putting our lives back together and I still hadn't applied.  The truth is that I was struggling with the idea of this whole thing because for Gavin to qualify, it means that things are pretty bad for him. It forces me to face his mortality and that's something I really struggle with.  Below…

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December 1, 2016
Emmett John

Unfortunately, Emmett’s sick

Emmett ended up home from school again today. This time is wasn't sensory related. I mentioned yesterday that Emmett appeared to be getting sick and I was right.  Unfortunately, he's dealing with what probably amounts to a cold or sinus thing. He's congested, his nose is stuffy and his throat hurts.  It's nothing serious but it's making him seriously miserable.  Right now, he's snuggled up with Mommy and watching Inside Out. We're keeping everything low key and relaxing today. There's nothing on the schedule so we aside from getting Elliott from school, we have nowhere to be. ☺  Hopefully, Emmett will feel better soon because he's really sensitive when he's sick, even more so than usual. 

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November 30, 2016
Gavin / General Medical Stuff / My thoughts

An important Gavin update 

​There are too many thing to talk about with Gavin anymore, but I will briefly touch on how he's doing overall.  Gavin's such a good kid. He tries so hard at everything in life and unfortunately, he's struggling. We're seeing more and more regression lately. Things like memory (especially short term), simple tasks and even walking have become more challenging for him.  He's very easily confused and that frustrates him a great deal.   On the positive side, his actual behavior is still a shining example for his little brothers. He caring, kind and gentle. He worries about everyone and always wants to help. Honestly, Lizze and I couldn't be prouder.  ☺  Everything else is par for the course when it comes to the things that make up Gavin. They're…

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November 30, 2016
Bullying / Elliott / My thoughts

A very important Elliott update 

​This week has been focused on the kid at school who's bullying Elliott. We spoke to his teachers and the principal but if today was any indication of how this is going to play out, we're going to have a problem.  While at Dr. Pattie's tonight, we spoke with Elliott about this and learned that there were more issues with this kid at school today.  Apparently, aside from smacking Elliott on the back thoughout the day, he's also throwing pencils at him during class as well. Elliott was hit in the leg today and when he told his teachers, they basically said they didn't see it happen, so they can't do anything about it.   Was Elliott hurt by the pencil? No he wasn't,  but is that really the point? …

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November 30, 2016
Emmett John / School / Sensory / Shoes and Socks

Sensory issues kept my son home from school again

The boys were up early once again. Everything was fine until it was time to get dressed and ready for school. Correction.. Everything was fine until it came time for Emmett to put something on his feet.   Lizze and I worked for at least an hour to help Emmett tolerate something on his feet.  We tried countless shoe/flipflop/slipper/crocs combinations both with and without socks. Nothing worked.   Lizze worked to desenitize his feet with deep pressure and spending some time in the rice box. We have a large box fill with dry rice and Emmett likes to stand in it. It has helped in the past but not today.  He wanted to go to school so badly but his body was fighting him at every turn.   Part of…

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November 29, 2016