Gavin’s IVIG infusion has been a disaster so far. First of all, the supply company shorted us the needles needed to draw up his meds. I had to find a pharmacy that carried theses and was willing to sell me … Read More
It’s been a pretty awesome weekend, at least in the big picture. The boys got to spend time with their Mom and I got to sleep. We even got to spend time with my family and have a great cookout. … Read More
For the first time since Gavin lost his immune system, he’s been off IVIG for one whole week. His immunologist wanted me to withhold IVIG this past week and start up again today.
This particular infusion is going extremely … Read More
It’s been an interesting morning thus far. Some of us are desperate for sleep and others among us are learning lessons the hard way.
Elliott and Emmett are driving me plum loco.
They both do things to illicit an … Read More
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Emmett’s having such a very hard time right now 😕 It’s so easy to forget that just because a child with Autism can speak, doesn’t mean they have the ability to express themselves.
Emmett has a … Read More