Why #Autism Awareness is still failing in 2016

Disclaimer: I want to make sure that you understand that I’m not criticizing anyone who may choose to support the Light it Up Blue campaign. Everyone must do what they feel is right for themselves and their families. If you do what you feel in your heart is best, you can’t go wrong…at least in my book.

April is here once again and we’re kicking off another . In the past I would get all excited about what this month meant but as time and reality set in, I’ve realized that April is really just another month.

Don’t get me wrong, it’s great to see the world interested in the lives of people and families touched by but are they really, interested that is? Is it really about people with Autism and their families? Is it really?

Here’s one of the biggest reasons I no longer get excited about month.

Rather than working together to accomplish great things for the people and families impacted by Autism, the entire month becomes a money grab for Autism organizations that in some cases, have lost touch with the very people they’re supposed to be helping.


Autism Awareness month should be a time when we come together as a community to help the world better understand what life with Autism is like for both the person directly impacted and their families or caregivers.

Instead of humanizing Autism and helping people better understand or relate, we’re screwing in blue light bulbs.  How exactly does illuminating a skyscraper with blue lights, help a struggling with Autism? How exactly does a blue light bulb help people understand what Autism is?

I suppose, you could learn what Autism is like through the eyes of a multimillion dollar organization who has all but completely alienated the very people they’re supposed to be helping.

Unfortunately, when some organizations speak, they are not actually representing anyone but themselves and their agenda. That’s not to say that funding research isn’t important because it is.  In fact, it’s crucial but should that be more important than the millions around the world, already dealing with Autism and often struggling with it every single day?

This blog is called The Autism for a few reasons but the most important of which is that I’m a Dad to three boys with Autism.

I have a vested interest in seeing the world become a more informed, warm, inviting, accepting and understanding place for my kids.  I do have somewhat of a platform and I really want to use it in a way that not only benefits my family but everyone else as well.

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  • Thank you for sharing this post! I would love to see more actual happen instead of just “screwing in blue lightbulbs.” I have two sons with and it would great if people could understand a little bit more about our instead of just staring. Big hugs. I’ll check out the group and good luck on the rest of the #AtoZChallenge
    -Katy from THE KATY blog (www.thekatyblog.com)

    • Thanks…. I hope you join the group and share your posts… I’ll check your blog out as well.. ☺

  • Anne

    Great Post and you are so right. I’m creating awareness with a group of blogging friends by linking up each others posts in a blog hope and sharing them all throughout the month. Although, to be fair, should last longer than a month!

  • Great Post, Awareness should be more than what we all have today,Although its more difficult breaking the barriers and myths in countries like mine where we don’t have the resources and people affected tend to hide away from the Society. I blog at (http://www.cuddlesandcarehomes.com) where i want to bring Information about together in one Place as well to create awareness too

    • Thank you and thank you for the work you do.. ☺