We got some bad news about Gavin and I don’t really know what to do with it

I still need to update you all on Elliott’s appointment today but that will have to wait for now because I received a call from Gavin’s immunologist. 

Gavin’s immunologist likes to call and give lab results personally. It always makes me nervous because usually doctors only call with

I’m both confused and concerned at the news I received today. 

Gavin’s immunoglobulins are low but we already knew that. This time however, she noticed that his platelets were low. It wasn’t super low but it’s definitely something that stuck out and she wanted to let us know. 
Apparently, a normal level is over 150 and Gavin’s levels were 147. 

Again, it’s not terribly low but it’s never happened before and that makes me worry. We’re going to track it for now and see what happens. 

She did say that sometimes kids with can develop some disorder that I can’t remember the name of and it effects platelets. 

At this point in time, I’m not going to freak out about this but I’d be lying if I told you I wasn’t worried. doesn’t ever do anything half way and nothing with his is ever simple. 



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  • My son had that his were 127. They gave us the Dax hyperfybrosis something only problem it causes him is if he has a nosebleed or scrapes he bleeds longer then normal but not to the point of needing medical care. And if he has surgery they have to give some to clot his blood. Found out he developed it after long term use of clonidine. Hang in there and try not to panic. I panicked 8 months waiting for the answer I just explained above. God bless you and your family!

    • Thanks for sharing. I know it’s not to the point of hemophilia but it’s something new and it makes me nervous cause we’re barely managing what’s already there.

      My best to you and yours.. ☺

    • Rob Gorski I get it. My son has too along with and severe developmental delays. My one 11 year old girl has earlier onset schizophrenia and my oldest has bipolar and severe anxiety! I think that’s why I love and pray for your all the time! Been living the life 17 years now. Right along your family!

    • Kelly Lyons Schaffer wow.. I’ve only come across a handful of people who have experience with childhood schizophrenia. If there’s ever anything I can do or if you need to talk, hit me up. It’s so rare that we find people in similar situations.

      Thank you so much for sharing…. ☺

  • Thanks for sharing. I know it’s not to the point of hemophilia but it’s something new and it makes me nervous cause we’re barely managing what’s already there.

    My best to you and yours.. ☺

  • Rob Gorski I get it. My son has too along with and severe developmental delays. My one 11 year old girl has earlier onset schizophrenia and my oldest has bipolar and severe anxiety! I think that’s why I love and pray for your all the time! Been living the life 17 years now. Right along your family!

  • That would be scary. Hope it all settles and doesn’t stress you out. Thinking of you.

    • Thank you Suzanne. It’s not that I’m overly worried, it’s just something new and poor just can’t seem to catch a break. Your thoughts are much appreciated… ☺

  • That would be scary. Hope it all settles and doesn’t stress you out. Thinking of you.

  • Kelly Lyons Schaffer wow.. I’ve only come across a handful of people who have experience with childhood schizophrenia. If there’s ever anything I can do or if you need to talk, hit me up. It’s so rare that we find people in similar situations.

    Thank you so much for sharing…. ☺

  • Kelly Lyons Schaffer wow.. I’ve only come across a handful of people who have experience with childhood schizophrenia. If there’s ever anything I can do or if you need to talk, hit me up. It’s so rare that we find people in similar situations.

    Thank you so much for sharing…. ☺

  • Thank you Suzanne. It’s not that I’m overly worried, it’s just something new and poor just can’t seem to catch a break. Your thoughts are much appreciated… ☺

  • Thank you Suzanne. It’s not that I’m overly worried, it’s just something new and poor just can’t seem to catch a break. Your thoughts are much appreciated… ☺

  • Stay strong, brother. If there’s one thing I’ve learned, it’s that it’s almost always worse in your head than it is in real life. This is most likely just a flash in the pan.

    Hope everything works out for your son.

    I just want to take this moment to say that reading your blogs makes me feel not so alone, not so overwhelmed. My 3 year old is on the spectrum and my wife and I are watching our 10 month old like a hawk (he’s beginning to show similar red flags) as well as manage our relationship with our NT 5 year old son. Some days it’s all just too much to bear. Then I read your posts and remember that we aren’t the only ones and that if others can do it, so can we.

    Thanks for doing this. Thanks for being there (even though you don’t know me) and thanks for being such a good father.

    Much love from my to yours

  • Stay strong, brother. If there’s one thing I’ve learned, it’s that it’s almost always worse in your head than it is in real life. This is most likely just a flash in the pan.

    Hope everything works out for your son.

    I just want to take this moment to say that reading your blogs makes me feel not so alone, not so overwhelmed. My 3 year old is on the spectrum and my wife and I are watching our 10 month old like a hawk (he’s beginning to show similar red flags) as well as manage our relationship with our NT 5 year old son. Some days it’s all just too much to bear. Then I read your posts and remember that we aren’t the only ones and that if others can do it, so can we.

    Thanks for doing this. Thanks for being there (even though you don’t know me) and thanks for being such a good father.

    Much love from my to yours